Profound

It's been a rough week. Very, very rough.

I woke up on Friday with a sore throat, feeling slightly congested. I was irritated. A cold? The flu? Why? And why now? My BFF, the Archaeogoddess, is here, in our tiny hometown. For the first time in four years, we are on the same continent, just minutes from each other, and I have big plans to spend a lot of time with her. As much as I can manage. I want to grasp every moment I possibly can. I want to chat with her husband. And I desperately want to meet her baby daughter. It is agony to have your best friend have her first baby when she is so far away. So, I resolved...I just would not get sick. That's all there was to it.

Bring on the tea, and the rest. Think positive.

Useless. Of course.

Saturday I felt worse and by Sunday, I knew it was Strep at best, though I began to suspect it might be worse. I knew I had a doctor's appointment on Tuesday, so I thought I'd suck it up and hold out until then. One of the big disadvantages of small town life is the lack of an Urgent Care facility. Basically, if you can't get an appointment with a doctor if you need one quickly, your only other choice is the Emergency Room. I've been told time and again not to wait too long before making this choice. Doing so puts me in a bad place. My pain levels grow, my exhaustion deepens, and my immune system, always wrong, always misfiring, will completely go haywire.

Monday was horrible. I had a fever. I also had an afternoon planned with the Archaeogoddess her husband and Spawn. But, besides the risk to the sixth month old baby, The Archaeogoddess' brother has just recently had chemo, and though he is now cancer free, his immune system isn't in great shape. I can't justify the risk of that exposure, so I cancelled. And then I hung up the phone and cried. I sobbed and hurt so much. I hadn't felt like that since...well....since the god awful break up with the EG. Maybe not even then. I just felt so angry and hopeless, and so completely and utterly sad.

Being chronically sick has robbed me of so much, and now it's stealing the few precious hours I have to be in the same room with the person I love most in the world, after the Midget. I got home that day from having to accompany my cousin and her daughter to the dentist (long, long story) and took a short rest and woke up and realized that waiting just the 18 short hours to the following morning's appointment was a bad idea. My chest started hurting and I was coughing up green mucus. I could not wait.

At the ER, I was lectured about waiting and diagnosed with bronchitis and a sinus infection. I was given high dose antibiotics, a pain shot and a higher script for prednisone for the week. I went home dejectedly, and a little giddy from the pain shot, and called the Archaeogoddess and told her I'd have to put off the visit, and what with Thanksgiving and all, I might not be able to see her until Saturday.

This morning's doctor's appointment was for my disability paperwork. My doctor wanted to see me before he filled it out, to really get a clear idea of my physical state as it applies to tasks... It was entertaining to hear him complain about the hoops that someone who is sick has to jump through to get the help they need. And then he said something to me that he'd never said before. He looked me in the face and said "In my opinion, you have a profound level of disability."

Profound: a : characterized by intensity of feeling or quality

b : all encompassing : complete <profound sleep> <profound deafness>

I know this. I know that I am unable to do more than the simplest tasks without exhaustion, pain and weakness. Grocery shopping requires two days of rest beforehand, and at least three days of recovery afterwards. Some days, simply showering takes all the energy I have. This has been my reality for quite some time now. And yet...hearing it from a doctor in that definite, declarative fashion was like a kick in the stomach. It literally took my breath away. This is real. I am disabled. A vindication of sorts after years of begging doctors to just figure out what's wrong. And a deep sense of loss.

When I remember the person I was before all this started...it hurts. I miss my old life, my old self, in a physically painful manner. I miss my friends, I miss having a social life. I miss hiking and camping. I miss working, and feeling like I did something that mattered. I miss being able to clean my house from top to bottom in one day. This is what being sick has taken from me.

I know, though, that I am blessed in so many ways. I have so many amazing people in my life who love me. I have my beautiful, fantastic daughter. I am not homeless. I can see and hear, and walk (as long as it's not too far, doesn't have anything to do with stairs and hills and I can rest when I'm done) and talk. It could be worse. But, that knowledge doesn't really make it easier to be sick.

Thanksgiving is my favorite holiday. I love the food, the family. I love the sense of tradition in our family on that day, being together, laughing and enjoying each other's company without the stress of Christmas and all it's commercial burdens. I usually cook the vast majority of the meal. This year, however, I am making only stuffing and rolls. I won't be up early in the morning to get the turkey in the oven. I won't be cutting and peeling sweet potatoes or mashing regular spuds. And I'm pissed because I love doing those things, but I just can't. If I want to have a fighting chance at being able to have a party for the Archaeogoddess on Saturday, I have to rest and conserve energy. I have to accept the reality of sitting on the couch with my heating pad while others cook.

I am so sad. I feel hollowed out and bereft.

Tomorrow, I'll get up, get dressed and smile. I'll go to my sister's house and enjoy a Thanksgiving dinner with her and my niece and my daughter. I'll remind myself of all that I have to be thankful for, and look forward to seeing my BFF this weekend. I'll breathe in and out. But, tonight, I feel profoundly alone, profoundly sad, and profoundly bereft.

Too Safe?

When it comes to your child's safety, can you be too safe? I've pondered this idea for awhile now, especially since so much has changed since the midget was little, so just the last 7-12 years, basically. When the midget was little, babies were supposed to sleep on their sides to prevent SIDS, but now they're on their backs again. Back-facing car seat until 20 pounds, and front-facing after that. The midget was in a front facing car seat at about four or five months, whereas now that's not legal or safe until a year of age. So, apparently the midget was unsafe for about 8 months. Horrible parent, aren't I?

And then, when she was 4, and well over the legal 40 pound limit, I stopped struggling with the car seat in the back of our tiny Hyundai. And now, the law says she wasn't safe until she was 4' 9" and 80 pounds. I was reminded of all this thanks to a fantastic rant by my beloved Archaeogoddess on the difficulties of car seats. And, because I'd just finished reading this I thought it was an interesting question, can our kids be too safe?

When I was growing up, we didn't have seat belts half the time, let alone car seats. Our moms put us on our tummies to sleep. Stranger danger was a newish concept, and the dangers of pedophiles were talked about only in cheesy after school specials, and yet, most of us grew up more or less okay.

When my oldest niece was born, I remember thinking that her mother was going to suffocate her because she was obsessed with safety. I held the child once in her baby days because I couldn't handle all the instructions--"Don't kiss the baby! We're too concerned about germs!" "Hold her like this, not like that!"--and on and on. I remember thinking, "Ya know, I've had one of these, and she's still alive and sound...that's her over there, remember?"

Not coincidentally, my oldest niece was plagued with colds and bronchitis that led to so many ear infections that she had tubes put in at the age of two. Her growth was also delayed due to her many illnesses. You see, when you don't expose a baby to germs, their immune systems don't get the strength they need that comes with the experience of fighting off small infections. Said niece, though I love her dearly, is also the most spoiled and willful of all the children, and that's saying something. She is a victim (for lack of a better term) of helicopter parenting.

Helicopter parenting, so common today, is my deepest fear for the children of the midget's generation. They are protected from everything, even the dangers of accepting their own failures...there are no longer winners and losers in games or competitions for the sake of saving the feelings of these precious little darlings, and I get it, I do. I know I hated it when the midget was sad because she didn't win at a game, or another kid didn't like her, but that's life. You aren't going to always be the winner, and not everyone is always going to like you, and that's easier to handle it when you learn how to deal with it an early age. It's very difficult to reach the age of 18 or 21 or whenever Mommy finally cuts the apron strings, if you don't know how to deal with all of those things. If you've always been protected, you don't learn how to protect yourself.

I am not saying put your kid alone in room with glass shards to keep them from leaving and fill their bottle with codeine cough syrup rather than springing for a babysitter. (That's what duct tape is for). Nor should you ignore the common sense stuff...vaccinate, use seat belts and car seats, and for the love of god, don't put their names on their backpacks and sweatshirts to make it that much easier for strangers to gain their trust. But, at the same time...let them get kisses from aunties, even if they catch a cold, let them skin their knees and feel the sorrows of coming in last. This world is not always safe and soft and protecting, and we aren't always going to be there to catch them, so they need to learn how to protect themselves.

Because, after all...in the end you are not raising a child. You are raising a person who will one day be a responsible adult, one that must stand on her own two feet, without the training wheels, without the bubble wrap, and without Mommy's sheltering embrace.

I'm Not Even Breastfeeding....

...and yet I feel compelled to jump into the fray. Because it's a big deal, apparently, this whole breastfeeding/formula fracas.

That's right...I haven't posted anything in over a month, and rather than write about something relevant to my life...you know, like about how I have pericardial effusion (fancy-schmancy term for fluid around the heart), and am now waiting to see a cardiologist. Instead, I'm going to write about this breastfeeding stuff.

When I was breastfeeding, the internet was still in it's fairly early days, and hardly anyone had blogs or got all their medical information online. Now everyone has a blog, and half of us diagnose ourselves via WebMD before we even make our doctor's appointments.

I was 22 when I had the midget. Young enough that I wasn't really prepared to be a mom, but old enough that no one saw me and went "Oh Em Gee, babies having babies!" Or whatever judgmental thing people say about teen moms. I was pretty big into the natural stuff, natural childbirth, breastfeeding. I figured I would have a baby the old fashioned way and feed her the old fashioned way.

I went ahead with the natural childbirth, but only because I got to the hospital four hours before the midget passed through my birth canal. About 30 seconds into pushing, I turned to the midget's father and said "I don't want to do this anymore." It didn't help that during the hours leading up to the pushing stage the midget's father would look at the monitor and say, "Oh, you're having a contraction, and it's a big one!" And I was all...no shit, Asshole. Because being in labor makes you say stuff like that. And frankly, being me makes you say stuff like that.

So, there I was set to breastfeed this child. I'd read a couple of books, so I totally knew how to do it, right? Wrong. First of all, the midget had low blood sugar at birth and so she needed to be fed...and even if we had been able to manage that whole breast feeding thing, the first couple of days after the birth, a woman's body only produces colostrum, which isn't high in sugar. So, she had formula, and they brought a breast pump in for me to use. Only this was nearly 12 years ago, so it was huge, not one of these cute "comfortable" pumps. It was a monstrosity. But we got through it and by the time she left the hospital her blood sugar was fine and we were breastfeeding sort of. We got through it, especially once my milk came in and we both got the hang of it...only...

I hated breastfeeding. It was "icky." I was 22 and breasts were for fun, not for producing dairy products. But, I persevered. I figured we'd get to a point where I was having those beautiful bonding moments mentioned in every book I read. But it never happened. Every day that I breastfed the midget, I hated it. I was grumpy, and uncomfortable. I had a nasty case of the baby blues, which I still haven't really ever talked about with anyone. I've alluded to it with a few friends, but it was dark. I imagined driving away and leaving my baby with somebody, anybody, sometimes even nobody, as long as I could leave...and that was on good days. I can't bring myself to type the thoughts that went through my mind on bad days. Some day, maybe with therapy...but not now.

Needless to say, the postpartum depression didn't help the breastfeeding challenge. Which is why, when I read this little article tonight, I got furious. When the midget's doctor decided to switch her to soy formula because she was lactose intolerant and that meant no more breast milk, I was thrilled...and I felt like the worst mother in the world. What was wrong with me that I didn't love breastfeeding? Didn't I love my kid?

I just don't get articles like the one I linked to above. How does choosing to feed your child something that is perfectly healthy and formulated perfectly for infant nutrition wrong? Yes, I get it that breastfeeding imparts natural immunities and I'm sure there are women right now judging me and blaming the midget's Type 1 diabetes on her not being breastfed (despite there being no link between formula or breast milk and Type 1 diabetes...so neither is to blame for diabetes, though not breastfeeding does seem to be linked to obesity rates in older children which can lead to type 2 diabetes). But I agonized over hating breastfeeding. I hated that I hated it...that and my not infrequent wish that the squalling midget was far, far away and I was a footloose woman with lots of freedom made me insecure about my parenting for years.

Perhaps not coincidentally, the postpartum depression disappeared not long after I stopped breastfeeding. Once I had no choice but to bottle feed the midget, I could enjoy her feeding times (well, except for the smell of that god-awful soy formula...blech), and because I didn't feel like a walking dairy, I didn't resent her as much. But I couldn't admit to other people that I was glad not to have to breastfeed anymore, because I knew how they'd judge me.

Since then, my most beloved Archaeogoddess has had a child, and we've discussed breastfeeding, including the fact that I hated it. She found an article that showed that there may be a hormonal imbalance that causes some women to dislike breastfeeding. See, because in the natural order of things, breastfeeding is supposed to trigger a hormonal response that causes mother/infant bonding. I was clearly a freak because that didn't happen for me. Or so I thought. And, frankly, the Archaeogoddess is the first person I ever told about my dislike of breastfeeding that didn't automatically think "Bad Mother." Of course, the Archaeogoddess is my go-to person any time I need to talk about something that could potentially cause someone to judge me. Because she doesn't. She doesn't look at me and think "Bad Mother" because I hated breastfeeding...she thought, huh, that's different, maybe there's a reason for that...and it's one of the eight gazillion reasons I'm blessed to have her as my best friend.

Mental illness issues are difficult, but when you don't have someone like the Archaeogoddess in your corner, not judging you it's even worse. I know I'm lucky...I cannot imagine how many women read articles like the one I linked to above and think, what the fuck is wrong with me, and I should just keep my damn mouth shut about hating breastfeeding, or even the idea of it, and unlike me, they don't have a best friend who will simply say, "OK" when being presented with clear evidence that according to the La Leche League their best friend is THE. WORST. MOTHER. EVER.

I get the judging thing, I do...there are times when I see parents giving their tiny monsters everything they want and never saying no, and never disciplining and I think they are the worst parents in the world...or the parents who do just about anything that's going to have a long term impact on a child's ability to function in society, I totally judge them. But judging a parent because they give their child a perfectly healthy substitute for something I choose to feed my kid? No fucking way. And frankly, since I get people evaluating the midget's general diet all the time now (because you know, they are experts on Type 1 diabetes, and they are sure that my kid can't have that diet soda I just gave her, or that candy I just gave her), I almost think I'm more sensitive about the breastfeeding issue now than I was then.

Yes, in a perfect world, every baby would have breast milk, and mothers who have an aversion to breastfeeding could buy or get breast milk donated to them easily. But, we don't live in a perfect world, and there are plenty of mothers who have to choose between their antidepressants and breastfeeding, or other medications and breastfeeding, and they shouldn't be judged for that. It isn't as though they are depriving their child of adequate nutrition. So, shut the fuck up about it. It isn't any one's business what nutritionally sound food you are giving your child. I mean, fine, if you know someone who is filling their kid's bottle with vodka, go ahead and get involved, but even if you think formula is the last thing that would ever cross your baby's lips, it's not your fucking business what that other mother is feeding her kid, or why. Let's focus on the babies who are getting nothing to eat, or the mothers who are watering down formula because they can't afford enough formula, but let's educate them, not judge them, or even better, if you are breastfeeding and you think it's essential for all babies to get breast milk, make yourself part of the solution, find someone in your community raising an infant that's addicted to crack, or a mother who has HIV, and can't breastfeed, and donate your breast milk. And don't go around thinking that the ability to produce milk makes you a better mother than I am...any fucking mammal can produce breast milk, so doing so doesn't make you a good parent, any more than it makes an alley cat a good mother.

Baby, baby, baby...

I'm going to let you in on a little secret. I don't like other people's children. I never have. I'm the girl who doesn't think your little darling throwing himself on the floor in the middle of the store to get that toy is cute. And I think you're a jerk for subjecting me to his screams and his dirty, snotty face.

So, I was always like that...I babysat a few times, and my BFF the Archaeogoddess had a little brother ten years younger that I saw from time to time, and I didn't have the desire to punch him. So, given that I didn't really like kids, I didn't really plan on having them. But, then...uh...whoops...and there was the midget. And she was awesome. But I knew a lot of that is that built in biology thing, that moms are sort of programmed to love their kids. Which is good, because she wasn't an easy baby, and I'm not a patient woman. But I learned. I learned when to walk away, undeniably the single most important lesson I learned as a new mom.

But falling in love with the midget didn't mean I fell in love with all kids. I was still one of those women who didn't really like other people's kids. And since I was youngish when the midget was born, it wasn't like my friends had kids or anything. So, I loved the midget...but that was it. I liked the midget and other people's kids were annoying and frequently smelly and rude.

Okay, so then...I had a niece, and then another one, and then another one, and then a pair of nephews. And I finally fell in love with kids, at least these kids. I love them because they're my babies as much as the midget is my baby. I comfort them when they skin their knees, put them on time out when they bop their cousins, and make sure they talk to their mommas with the respect a mom deserves. In return, I get sticky hugs, pre-chewed food in my hand and that beautiful feeling when I walk into a room and one of them shrieks delightedly, "Auntie Doda!"

I've got babies on the brain tonight, in part because my beloved Archaeogoddess is getting closer to her due date, and it's killing me more than ever to be so far away, because I'm already in love with that baby, and I want to be there to see her come into the world, but also because my youngest niece is coming to visit with the fam this weekend with her grandma. Because her momma, my baby cousin who has been in some pretty dark places, stopped taking the medication that makes her capable of functioning and she's back in the hospital, and I don't know for how long, but I'm so beyond thankful that she checked herself into the hospital and that she's getting the help she needs, because that baby needs a momma, and I'm not interested in losing one of my cousins.

I still don't know if I like kids, necessarily, but I do know that certain kids have the power to steal my heart. I know that I'm thankful that my youngest niece has the family she has to shield her and cocoon her now while her momma is going through the dark times again. I know that I love a baby who hasn't even been born yet, just as I love the midget and her cousins and I know that my life would be a sadder, darker place without the babies I love so much, and I know from my own struggles with the darkness, that there's no better incentive in the world to fight the depression than your children. So, while I'm thankful for my baby niece for her own precious little self, I'm beyond thankful that she is here to give her momma a damn good reason to fight and get through this, get the help and get better.

Oh, Finally....

It's been a million years since I wrote a blog post, and even longer since I actually published one. Between Christmas, New Year's and the holiday hang over blues and nasty inflammatory flare, the last thing I've wanted to do was try to come up with pithy and amusing anecdotes about my sad little life.

I had a doctor's appointment about a week ago, and he FINALLY fucking got it...that I'm actually, truly in pain, that there really and truly is wrong (thank you, for something finally showing up in the lab work) and he gave me drugs, and referred me back to Stanford's rheumatology clinic. Which is good for him because if he hadn't I was going to cut that motherfucker.

So, I'm trying to take the drugs as little as possible because, after all, I'm a mom to kid with Type 1 diabetes, and I'm a full time student. (Well, hello, spring semester, where the hell did you come from?) And I'm awaiting the late February rheumatology appointment rather impatiently. I would give just about anything to feel normal again...to not have to psych myself up for five minutes just to endure the pain of standing up...to not be so tired that getting dressed lays me out flat.

I want to talk about something The Bloggess put up the other day...about not being ashamed of mental illness, and "coming out" and letting others who are suffering know that it's okay to get help. I'm bipolar and it took me years to get properly diagnosed because I only ever sought treatment when I was so depressed that someone forced me to admit that I needed help. I'm damn lucky that the years of being prescribed antidepressants that were not intended to treat bipolar disorder didn't send me over the brink and land me in the hospital or worse. It's not that I didn't know that not being able to sleep and talking a million words a minute and spending the rent money on frivolous crap were abnormal, it's that being manic feels good...until it doesn't. I also have anxiety disorder and suffer from panic attacks...it's why I'm awake right now, actually. I woke up in the middle of the night in a full blown panic attack, and though the Ativan has brought me down from the ledge, I have had so many nights when there were no drugs and I was too ashamed or scared to ask for help, and only the thought of what it would do the midget and the Archaeogoddess has kept me from hurting myself.

What prompted The Bloggess to "come out" was the breakdown and subsequent suicide of the husband of a fellow blogger. It's heartbreaking that it ever gets that far, that someone, for whatever reason, is too ashamed or frightened to seek help when something's not right. There's such a stigma attached to mental illness, and there fucking shouldn't be. My bipolar disorder is no less a disease than my Fibro, or my arthritis, but that doesn't mean other people accept it as such, or that I've always treated it as such.

My point? If something's wrong...get help. Staying quiet and suffering nobly is bullshit. And you aren't saving your family and friends by suffering in silence. Hiding that shit from them will hurt them and scare them far more than telling them and letting them help you. Trust me on this.

Come out. Get help.

Reason #862 I love the Archeaogoddess

A year or so ago, I got an e-mail from my most beloved Archaeogoddess with a link to a blog she thought I would enjoy. As usual, she was totally fucking right. And I fell in love immediately with The Bloggess.

This was the post that started it all. I was laughing so hard I was in tears. I spent the rest of that day reading through her archives and have been hooked since. Jenny, The Bloggess, is an amazingly funny, brilliant and irreverent writer. She has a beautiful soul, and a gorgeous smile. I love this woman. If it wouldn't require so much time and energy (since she lives in Texas of all the godforsaken places) I would totally stalk her. Though, since she's not a social butterfly and has a tendency to hide in bathrooms, it probably wouldn't be so difficult, come to think of it.

Anyway, since I'm doing my best to stalk her in the only ways available to me at the moment, I was totally on it when she made a Twitter request for favorite blog posts about Victor, the luckiest man in the world her husband. This was the blog post I immediately wanted to nominate, because it's fucking hilarious. Of course, I was in a pain induced fog, so I couldn't remember the name of the blog post or when it was posted, so I spent the day reading through her archives, and it kept me from crying. Because, seriously, the pain was that bad yesterday, but she's made of the awesome and can make anything better. Seriously, if I could bottle the woman, I would.

If you are unfamiliar with her blog, go there now and fall in love, and share her with all of your friends and family. Friends and family who can take a joke, because amongst some of her more memorable jokes are things like dead kitten mittens for the homeless. She also has an advice column and a sex column, both of which are equally hilarious.

Well, what the fuck are you still doing on this rinky dink little blog...go...spend the whole day reading The Bloggess' archives and fall in love.

Junk Science

At the risk of sounding really conceited, I'm a really intelligent girl. There's quite a bit going on my noggin...no common sense 99% of the time, but that's a whole other ball of wax.

As an intelligent girl, it never ceases to amaze just how uneducated (or just plain stupid) other people can be. There's so much information available in the world, it seems a waste to not take advantage of it. But, that's not the worst of it, really. The worst thing (as far as I'm concerned, anyway) is that some people will believe anything they read or see or hear someone else say. The idea of finding legitimate sources, or cross-checking facts simply doesn't occur to them. They read it on the internet or in some new-age dimestore novel and so, of course, it must be true.

This sort of thing, the "I saw it on the internet, so it must be true" ridiculousness is my single largest pet peeve. When I run into it, it makes my head explode. Okay, not really...but it does set me off on a three hour lecture about fact checking and peer reviews and reliable sources, and no, goddammit, Wikipedia is NOT a fucking reliable source.

The Archaeogoddess runs into this far more often than I do, what with her being a an archaeologist and all. I once listened as this utter moron I know talked about The DaVinci Code conspiracy crap with the Archaeogoddess as though it was fact and not ridiculous fiction. The Archaeogoddess kept a polite smile on her face the entire time, and then politely changed the subject. If it had been me, I'd have berated the woman up one side and down the other...but that's just part of my charm.

Here's a hint, folks...if it's been "kept hidden" or if it's a "secret they don't want you to know" move on. It's likely utter nonsense.

And just because there was a "new study" that showed that the cure for cancer is rubbing bacon grease in your butt crack, that doesn't mean every cancer patient should be slathering on the lard. A study is just that...a single study. It could have been an anomaly, a chance occurrence, a mistake made by the researchers. In order for something to be true, you must be able to prove it. You must show me proof. I want to see first sources, and repeatable results. Your cousin's friend who drank pomegranate juice and suddenly cured her fibromyalgia isn't going to impress me.

The Archaeogoddess Rocks!!

Ha..I love it...Archaeogoddess...rocks...get it? I kill me!!

Anyway, my best friend is on a dig in Qatar as a paid archaeologist. You can read about her adventures here. I am so proud and amazed and thrilled...despite the fact that she's even less accessible than normal due to lack of regular internet access.

On a completely unrelated note...I have been reunited with my beloved laptop and should, therefore, be back to posting quasi-regularly. I broke my ankle the day before Halloween so my life has been that much more lacking in adventure, but I'm sure I'll find something to blog about, given enough time I always find something about which to complain.