Showing posts with label depression. Show all posts
Showing posts with label depression. Show all posts

Wednesday, July 18, 2012

Piano Playing Panty Peelers

I'm warning you right here, before your read a sentence further than you have to, that I'm on day 4 without my antidepressant medication.  Needless to say, I have no idea if what comes after this warning is worth your time, whether it makes sense or if, in a week, when I'm back on the meds and a little more evened out, I may come back here and go "What. The. Complete. Fuck?"  So, you know, if you feel like maybe you just want to wander away and look at pictures of disapproving rabbits, you go right ahead.  I promise not to track down readers by their IP address when I see that they clicked off my blog within a few seconds.  Or well...I'm sure that my meds will kick in before I have the chance to track you down, and I'll think better of it of planning extensive revenge.  Probably.

Anyway, there's this book out there called 50 Shades of Grey that is supposedly all the best things about sex and romance ever.  Or at least that's what people are saying.  I don't really know, because I had never heard of it before yesterday.  Because I live under a rock, apparently.

So, the way that I was introduced to this book was through this fabulous recap on a blog by writer Jennifer Armintrout, who I also had not heard of before yesterday, but who is ridiculously funny, and who writes really well, and whose books I now want to read in entirety.  I've already read one written under her pseudonym Abigail Barnette entitled Bride of the Wolf, which if you're looking for well written, incredible sexy erotica involving a werewolf, I highly recommend it, especially since I never once had the squicky, bestiality vibe I usually get from sexualized werewolves.  Also...I'd like to take a moment to appreciate the irony that Barnette is the pseudonym, while the unlikely sounding Armintrout appears to be her real last name.

Anyway...

Apparently, 50 Shades of Grey started out as Twilight fan fiction, which is abundantly obvious, despite furious claims by fans to the contrary.  It is Edward and Bella do BDSM...badly.  I'm not someone who is a heavily into the BDSM scene, but I have been curious about it, and as I do with anything that makes me curious, I researched the shit out of BDSM, something the author of 50 Shades apparently didn't feel the need to do, since she portrays BDSM as an outcome of childhood abuse and an inappropriate teenage relationship with a pedophile.  Now, I don't doubt there are people out there who have been damaged and can only experience pleasure through BDSM, but it's not the norm in the BDSM community.  And as an adult survivor of childhood physical and sexual abuse, I can tell you that it reliving what someone did to me as a child is not even a little bit sexy, and any BDSM activity I've ever been interested in would have stopped immediately if it even for a second reminded me of being abused as a child.

Okay...all that is interesting, and the sexual politics in the story are definitely something we should all be talking about.  Are we really wanting to encourage girls to read a book where the heroine feels she has to give in to things she doesn't want to do, just to keep her partner?

But, that is not the purpose of this post.  I don't want to have that conversation right now because, frankly it's too emotionally triggering for a woman with PTSD to have while off her meds.

Anyway, this book, 50 Shades of Grey, like Twilight, have women all over the country bemoaning the fact that their husbands and boyfriends are not as awesomely romantic as these fictional characters.  Women who are deeply disappointed not to be living with the men (Christian and Edward) in these books every day.

Now, I want to talk about something that Edward and Christian have in common...they are these dark and brooding characters who are so damn sexy that all females in their immediate vicinity want to drop their panties immediately upon seeing them.  (But, Christian is not not based on Edward...no...) They are, of course, perfect examples of the male physique, and they are dark and brooding.  And they both play the piano masterfully.  Wait...what?  Somehow, it's sexy for these guys to play the piano?  I don't know where that comes from, because I know when we were kids, we always pictured the boys who took piano lessons to look like this:


Now, don't get me wrong.  I have some amazing guy friends who are probably deeply embarrassed when their moms show people the pictures in which they look exactly like this boy.  And they grew up to be pretty cute guys.  But...paragons of all things that exemplify masculine beauty do not look like this.  They just don't.  Which is why, in the Twilight movies, Edward looks like this:


And it's rumored that Christian from 50 Shades of Grey is going to look like this:


With all due respect to my nerdy male friends, who are too fucking awesome for words, this:


Does not grow into this:


I'm sorry, but it just doesn't.  And, you know what?  I'm actually glad that's the way it is.  It would be really, really fucking unfair if you got to be that incredibly hot and also you were this cool, nerdy guy who played the piano.  The cool, nerdy guys who play the piano have a lot to offer.  Guys who look like that, usually, well...they don't.  They're asses.  Because they fucking know they are hot, so why do they have to be cool, interesting guys?  They don't.  They just have to sit there and smolder and half the women in the room will have to go and change their panties.  Cool, interesting guys are that way because they have interests outside of what hair gel makes their hair look just messy enough to be hot.  They have spent their lives learning that earning romantic attention means having something to bring to the table, something that's going to make women want to talk to them rather than the guy smoldering away at the end of the bar.

But then, tonight, as I was listening to my iPod and crying like a fucking idiot (I mentioned the part where I'm not on my meds, right?) it hit me.  There are two songs that are responsible for this whole piano playing, romantic, hot guy bullshit....

Fucking Brenda Russell with her Piano In The Dark:


And fucking Lauryn Hill with her Killing Me Softly:


Those. Fucking. Bitches.  Seriously, are they trying to make women feel like their men are not panty dropping material unless they are not only accomplished men, but accomplished men who are hot and can play the piano?  Between those women and Stephanie Meyer and E.L. James, they are ruining sex lives every where.  Brenda Russell and Lauryn Hill laid the groundwork, instilling these damn songs into our collective American female psyche, and then those bitches Stephanie Meyer and E.L. James come along and cement the bullshit idea that this hot, piano playing, brooding guy is the only kind of guy who can and should have access to our wet panties.

Look, ladies....I've dated musicians.  In fact, my only serious relationships of my adult life were with musicians, and this after my musician sperm donor biodad walked out on me at age four.  (I know, I know....my psychiatrist has a field day with that one, let me tell you...)  And, in dating musicians, I've also spent a lot of time with their musician friends and, you know what?  Musicians don't make good partners, because you will always, always come second to the music, ladies.  Yeah, they may do charming shit at first and play music for you and make it seem all romantic and shit...that doesn't last.  You end up resenting the flotsam and jetsam that musicians strew around your home.  You resent the nights that they don't come home and take out the trash because they're out playing music.  You resent the fact that you have to wear headphones to read because of the incessant practicing.  When you've heard a song five hundred times, it's not romantic anymore.  It's fucking annoying.

So, even if you manage to find your, hot, brooding piano player, he isn't going to give up the piano for you...anymore than an artist is going to stop painting for you, or a writer is going to stop writing for you.  And as a sometimes writer myself, I can tell you that no matter what, the art is the first and purest love in an artist's life.  Even if they aren't playing or painting or writing because life and family and all of that gets in the way, the art is still the deepest love.  And, if they do give up the music for you, they are going to resent your ass.  It's not going to be all romance and roses anymore.

So, okay...read these books, listen to these songs.  Enjoy them.  I sure as hell do.  But, understand that these books are fantasy.  Edward Cullen doesn't exist, and not because he's a vampire, but because that person, the perfect, sexy amazing man who never annoys you or resents you or makes you want to strangle him doesn't fucking exist.  And why would you want that guy, anyway?  Look at how Bella/Ana is always so filled with shattering angst about how these gods among men are just too good for them.  Yeah, that sounds like a fun and sexy way to go through life.


Wednesday, June 06, 2012

Adventures in Self-Love

I really wish Blogger would quit changing shit...or that maybe I was around often enough to notice and understand the changes.  Mostly, though, it's the option that requires on effort of my part.  That's just how I roll.

Ahem.

Anyway, I am here for once, and it's not just to post a video to a song that's roughly the same age I am.  Though, I admit that'll likely happen next.  And not just because listening to songs that are as old as I am makes me feel younger.  It's because sometimes the words in my head get garbled somewhere between my brain and my fingers, and so it's easier to post someone else's words and go..."Yeah, what she said."

I am recovering from a fantastic, but exhausting weekend.  My younger sister came to visit and we decided that , dammit, we deserved some fun.  So, we thought we'd head out to the Italian Picnic, which is a lot like a county fair without the livestock, but with the added bonus of bocce ball.  And, since it's one of the Amador County events, usually you run into everyone you've ever slept with, and their brother...and if you're anything like me, you've probably slept with them, too.  Strangely, I only saw a handful of people I knew, which probably means I'm getting old.  So, after a brief lap of the picnic, during which I was reminded that heels and grass are a bad combo, we headed off to a local bar, to have some fun.

And we did have fun.  I got the older sister to join us, and the midget's dad and his lovely girlfriend were there as well.  We listened to a band that plainly prescribed to the theory that if you can't play it well, you should at least play it loud.  There were a surprising number of people in a very small space, and the bartender made a mean White Russian.  Once our eardrums had been thoroughly assaulted and I had clearly had enough alcohol, we headed off to Denny's (also an Amador County tradition) and ate greasy food to soak up the alcohol.

The evening, combined with a weekend of family time has made me quite exhausted and achy, but my soul feels better than it has in a long, long while.  We're doing it again next month.  It's part of my new "take care of Laura" plan.  And frankly, I need it.  As much fun as I have hanging out with my family...and I do have fun, it's not the same.  Sometimes, I need to not be someone's mom or aunt.  Plus...I need a break from my cousin...I love her dearly, but her continuous unhappiness over everything is wearing.

Look, I get depression.  I understand how it sucks all the color out of the world, and covers even the best things in your life with shit.  It makes you feel like nothing has ever felt okay, and like it will never end.  I get that, but you can't wallow all day, every day.  You can't turn everything into a tragedy and you can't stop finding the humor in shit.  You have to laugh despite the shit, despite the depression.  Because if you don't, then what's the fucking point?

I've got a few more plans in the near future, things that are designed to make me furiously happy.  I've got lunch with a very old friend next week, and another night out with my sisters next month.  I'm talking dancing on tables and waking up in the morning with my fake eyelashes stuck to my nose, going, "Damn that was fun."  I can't wait!

And, because I have to share my musical obsession...here's what's on repeat on my iPod this week...

Sunday, February 19, 2012

What's Going On.

This is going to be a long and difficult post. It's okay if you want to go look at pictures of disapproving rabbits or read a funny dyke blog and learn lots of new terms for dykes...go right ahead. I've done plenty of both in the last few days, and it's far more enjoyable than anything else going on in my life right now.

I'm sitting on my couch with my heating pad on my lower back right now. I cleaned my bathroom yesterday and the backlash of that is major back spasms and unremitting headache. I also got bit by a tick in the upper, fleshy part of my arm (like there's a part of my arm that isn't fleshy) and it's swollen and itching like a motherfucker. I suspect, from experience, I'm incubating a case of cellulitis that is going to require antibiotics. I am not a happy camper.

I had a very disappointing appointment with my rheumatologist at Stanford on Tuesday. I had great hopes of some new medication that would help banish this fucking godawful flare I've been in since the Archaeogoddess visited and I had that stupid bronchitis. That didn't happen. My rheumatologist did a cursory exam, looked at my latest labs and asked me how my prednisone was working. I told her that it wasn't working as well as I'd like because I was still dealing with so much inflammation, so much pain, so much fatigue. She told me, despite having been told differently by my orthopedist, my cardiologist and my general doctor that while I clearly have some sort of autoimmune disorder, that at the moment she can't definitively say Lupus or RA...obviously I have arthritis in my knees, and my lower back, but she's not sure it's rheumatoid in nature.

Unfortunately, Immunology is not a well-researched branch of medicine. There is sooo much they just don't know about autoimmune conditions. The money for research isn't there. When people donate, they donate to breast cancer, and heart disease and diabetes. All great causes. And obviously, diabetes is one of those that's near and dear to my heart. But they aren't researching the autoimmune component of Type 1 diabetes as much as they are other components. Immunology just isn't well funded research-wise. And god knows it's not understood.

Then, my rheumatologist, who is roughly the size and shape of a pencil, started talking about my weight. I am fat. I'm not overweight, or voluptuous, or any of that. I'm full on, motherfucking fat. And god knows the prednisone doesn't help. And neither do any more diagnosis. A woman with PCOS (polycystic ovarian syndrome) and no thyroid has a better shot at winning the lottery than maintaining a healthy weight. And since I can't exercise outside of a pool, and can't afford a gym membership (poverty rocks), that doesn't help either. So, I'm used to the questions about my weight. And I'm used to explaining that yes, I have tried to lose weight, that yes losing weight would be nice, etc, etc...but my rheumatologist was going on about it as though it were the sole cause of my problems.

It isn't. I've always been on the bigger side, but when all this started...when I first got sick...I was in the best shape of my life. I was healthy, and active. I was hiking every weekend and going to the gym regularly, and eating great. And then, I couldn't. I couldn't because it hurt to move, because I was so tired it was painful. My food choices became more and more about what would the quickest, easiest way to feed us, rather than nutrient content and calorie count.

And the prednisone. The fucking prednisone. It makes me so damn hungry that it makes me angry...angry hungry sucks. You can't ignore angry hunger. You must feed angry hunger, but it's insatiable. You never stop feeling hungry with the prednisone.

But, the other drugs for autoimmune disorders have worse side effects, and since there isn't anything life threatening going on, my rheumatologist doesn't want to try them. She does however, want to try a drug that is sort of experimental for my condition. It's approved for other things, but not for immune disorders, which means Medi-Cal is going to fight to not pay for it...but if we can convince them that it could be useful I will be going off the prednisone and trying this new drug.

She also wants me to consider gastric bypass surgery. Because, frankly, being this heavy isn't healthy, and since regular "diets" won't work (see the paragraph above about PCOS and no thyroid) she feels like it's my best and maybe only option.

But, gastric bypass surgery is no joke, my friends. It's fucking serious and would mean things like...no NSAIDS (non-steriodal anti-inflammatories). I'm on high doses of them, just like everyone else with arthritis. But because they are so stomach damaging, and gastric bypass gives you such a tiny little stomach, they are no-nos.

I've been doing research the last few days. I've had an e-mail exchange with the Archeaogoddess, and done a lot of thinking, and I'm so conflicted about it all. Part of me wants to throw up my hands and say "Fuck it, I'm never going to feel better" and curl into a ball in my bed and never come out. But, I'm a mom, so that's not really an option.

I've tentatively decided to get a second opinion, from another rheumatologist. I feel like my current one doesn't really listen to me the way that my GP does, and isn't as invested in helping me as a doctor should be. She is very....unhelpful, and doesn't hear my words. She has a perception of me as this fat chick who just needs to be thinner and everything will somehow magically resolve itself if I were thinner. Except that what's wrong with me made this fat, not the other way around.

Needless to say, this hasn't helped the dark hole of sadness I've been buried in lately. I'm trying so hard to pull myself out of it, but nothing seems to be going my way and that makes getting unsad even harder then usual.

Wednesday, January 18, 2012

Still Whiny

I'm in love with this song....I'm immersing myself in music, in writing, in anything trying to pull myself out of this dark hole I've crawled into.

Sunday, January 15, 2012

Wherein I Whine About Being Sick

It's been a long time. I've been in hiding, both here on the blog and in my own life. I've been in pain, been anxious and depressed. I'm currently waiting to feel well enough to go and help one of my cousins with a dehoarding project. Ironic, that I'm the one trying pull myself together to help someone else clean their house when my house looks like someone dropped a small bomb in the living room.

There was a SCENE last night. In capital words with screaming and tears and accusations. We've had this weekend in the works for awhile, my cousin collects stuff in a major way...clothes, movies, crap...just tons of stuff. Shoes she doesn't and will never wear, clothes in sizes way too small that she hopes to fit one day. It's depressing. And this, from me, the queen of the messy house. My mess, though is of a life lived now...not for the someday, "if" future.

Anyway, earlier this week there was an accident...Lily, the rat terrier I've been fostering for months pushed Charlie under the car as I was coming down the hill from my aunt's house. He has a broken pelvis, but with rest he should make a complete recovery. However, it was touch and go, and because the emergency vet didn't get a great x-ray, I spent the weekend thinking I was going to have put Charlie to sleep. It was so scary and awful. Charlie is my baby, my boy...my best friend (well, after the Archeaogoddess, of course). He got me through the break up with the EG. He's the one who is there at night when I'm hurting, when I'm up all night testing the midget's blood sugar, when I have a panic attack and can't find my pills. I love him, and the thought of losing him was killing me.

So, as I've mentioned before stress makes everything worse. Stress causes major flares. I've been flaring all week, and then on Thursday night, the midget had soaring blood sugars that wouldn't correct (fucking adolescent hormones collide with fucking diabetes) and I was up all night...so by Friday morning, I was done in. I slept nearly all day. I was supposed to do my grocery shopping for the meals for this dehoarding weekend, but since I couldn't hardly walk to my bathroom, grocery shopping was out.

So, that led to yesterday, which was nearly as bad as Friday. I was in agony (oh and did I mention the part where my doctor took two days too long to refill my pain meds, so I spent a day in narcotic withdrawal this week, too) and exhausted, but I finally dragged my ass out of the house at around 2 in the afternoon and headed to the grocery store and did not only my shopping, but shopping for the cousin we are dehoarding as well. I had sent a note to my other cousin and my sister-in-law who were coming to help dehoard telling them that they'd better not back out, and I can't say that it was a nice note. I'm not in a good place, and I panicked because I thought that they weren't going to show up, and I've felt so responsible for the one cousin for so long, and I just can't take it anymore. I'm not making it on my own, and feeling responsible for someone besides the midget is wearing on me.

So, of course, the fact that I made a big fuss and then wasn't able to come through didn't go over well. I walked in to a very hostile situation. My cousin was furious that I hadn't made it there earlier, that I didn't call all day and let her know that I wasn't going to be there until then. (Not the cousin we're trying to dehoard, but the other one.) She called me a liar, said I wasn't sick, that I just chose to flake, that I could never be counted on, that I take advantage of everyone.

I flipped. I told her she was a selfish bitch who takes advantage of her sister, and only cares about herself and that I was done. I wanted to leave. I was hysterical at that point. It was an echo of everything that the EG had said to me. It's my constant fear...that people think I'm making this up, that I'm choosing to stay in bed, choosing to not do all the things I want to do.

And then I wonder, how the hell can anyone think that. I was always a flaky bitch, it's true...but I was a flaky bitch who did stuff. I hiked and camped and went on road trips and cleaned my house and went out for dinner with friends. And I'd sell my soul to be that girl again. It kills me when I have to cancel on something because my body defies me. I'm so tired...and it's not the good tired of knowing you've accomplished something. It's an exhaustion that is painful. Breathing takes effort. Typing hurts...not just my joints, but the tips of my fingers, my skin actually hurts.

My sister-in-law made me stay, insisted we all talk it out. And we did, for an hour...but I don't think I made any headway making it clear that I'm sick. That Lupus is real...that I don't choose to stay in bed, that I don't choose to give up everything that matters in my life. There were lots of tears and accusations.

Following, as it did, on this hell of a week, needless to say it didn't help the flare. I'm beyond useless today. The pain pills aren't touching the pain today. I want to scream and cry and I'm holding it together for the midget's sake. I'm contemplating a trip to the ER for a pain shot, but I am terrified to ask anyone for a ride. I can't bear to hear again how I let them down, how I let everyone down all the time, and that even this is just to make people believe me.

And it's stupid. My doctors verify that I'm sick. I know I'm sick, but it took so long to get anyone to believe me that I'm still scared that I'm just crazy, that it's all in my head. This is what chronic illness is, this is what invisible diseases do. I want to wear a sign that says I have Lupus, and Fibromyalgia and RA and no thyroid, and bipolar disorder and panic disorder and it causes me extreme pain and fatigue and a million other symptoms. And the worst part of it...the very worst thing is that I'm never going to get better. I mean, hopefully someday I'll have some sort of remission, or I'll find the right cocktail of drugs to get my symptoms under control, but I'm not ever going to be healed, it will always be a part of me, and looking into the future 30, 40, 50 years down the road and knowing that it'll always be this way...that alone is enough to make me want to burrow down into the bed and never come out...but I do.

Anytime I have any strength I do get out of bed, and I do what I can. I try to live my life the best I can in the gaps between the bad days, the bad weeks, the bad months. I hate that I can't be a good friend, a good cousin, a good mom. I want to apologize for myself all the time, to apologize for the disease, and then I feel like, I'm the sick one, shouldn't someone apologize to me, shouldn't someone come and help me?

I hate being sick, I really fucking hate being sick.

Wednesday, November 23, 2011

Profound

It's been a rough week. Very, very rough.

I woke up on Friday with a sore throat, feeling slightly congested. I was irritated. A cold? The flu? Why? And why now? My BFF, the Archaeogoddess, is here, in our tiny hometown. For the first time in four years, we are on the same continent, just minutes from each other, and I have big plans to spend a lot of time with her. As much as I can manage. I want to grasp every moment I possibly can. I want to chat with her husband. And I desperately want to meet her baby daughter. It is agony to have your best friend have her first baby when she is so far away. So, I resolved...I just would not get sick. That's all there was to it.

Bring on the tea, and the rest. Think positive.

Useless. Of course.

Saturday I felt worse and by Sunday, I knew it was Strep at best, though I began to suspect it might be worse. I knew I had a doctor's appointment on Tuesday, so I thought I'd suck it up and hold out until then. One of the big disadvantages of small town life is the lack of an Urgent Care facility. Basically, if you can't get an appointment with a doctor if you need one quickly, your only other choice is the Emergency Room. I've been told time and again not to wait too long before making this choice. Doing so puts me in a bad place. My pain levels grow, my exhaustion deepens, and my immune system, always wrong, always misfiring, will completely go haywire.

Monday was horrible. I had a fever. I also had an afternoon planned with the Archaeogoddess her husband and Spawn. But, besides the risk to the sixth month old baby, The Archaeogoddess' brother has just recently had chemo, and though he is now cancer free, his immune system isn't in great shape. I can't justify the risk of that exposure, so I cancelled. And then I hung up the phone and cried. I sobbed and hurt so much. I hadn't felt like that since...well....since the god awful break up with the EG. Maybe not even then. I just felt so angry and hopeless, and so completely and utterly sad.

Being chronically sick has robbed me of so much, and now it's stealing the few precious hours I have to be in the same room with the person I love most in the world, after the Midget. I got home that day from having to accompany my cousin and her daughter to the dentist (long, long story) and took a short rest and woke up and realized that waiting just the 18 short hours to the following morning's appointment was a bad idea. My chest started hurting and I was coughing up green mucus. I could not wait.

At the ER, I was lectured about waiting and diagnosed with bronchitis and a sinus infection. I was given high dose antibiotics, a pain shot and a higher script for prednisone for the week. I went home dejectedly, and a little giddy from the pain shot, and called the Archaeogoddess and told her I'd have to put off the visit, and what with Thanksgiving and all, I might not be able to see her until Saturday.

This morning's doctor's appointment was for my disability paperwork. My doctor wanted to see me before he filled it out, to really get a clear idea of my physical state as it applies to tasks... It was entertaining to hear him complain about the hoops that someone who is sick has to jump through to get the help they need. And then he said something to me that he'd never said before. He looked me in the face and said "In my opinion, you have a profound level of disability."

Profound: a : characterized by intensity of feeling or quality
b : all encompassing : complete <profound sleep> <profound deafness>


I know this. I know that I am unable to do more than the simplest tasks without exhaustion, pain and weakness. Grocery shopping requires two days of rest beforehand, and at least three days of recovery afterwards. Some days, simply showering takes all the energy I have. This has been my reality for quite some time now. And yet...hearing it from a doctor in that definite, declarative fashion was like a kick in the stomach. It literally took my breath away. This is real. I am disabled. A vindication of sorts after years of begging doctors to just figure out what's wrong. And a deep sense of loss.

When I remember the person I was before all this started...it hurts. I miss my old life, my old self, in a physically painful manner. I miss my friends, I miss having a social life. I miss hiking and camping. I miss working, and feeling like I did something that mattered. I miss being able to clean my house from top to bottom in one day. This is what being sick has taken from me.


I know, though, that I am blessed in so many ways. I have so many amazing people in my life who love me. I have my beautiful, fantastic daughter. I am not homeless. I can see and hear, and walk (as long as it's not too far, doesn't have anything to do with stairs and hills and I can rest when I'm done) and talk. It could be worse. But, that knowledge doesn't really make it easier to be sick.

Thanksgiving is my favorite holiday. I love the food, the family. I love the sense of tradition in our family on that day, being together, laughing and enjoying each other's company without the stress of Christmas and all it's commercial burdens. I usually cook the vast majority of the meal. This year, however, I am making only stuffing and rolls. I won't be up early in the morning to get the turkey in the oven. I won't be cutting and peeling sweet potatoes or mashing regular spuds. And I'm pissed because I love doing those things, but I just can't. If I want to have a fighting chance at being able to have a party for the Archaeogoddess on Saturday, I have to rest and conserve energy. I have to accept the reality of sitting on the couch with my heating pad while others cook.

I am so sad. I feel hollowed out and bereft.

Tomorrow, I'll get up, get dressed and smile. I'll go to my sister's house and enjoy a Thanksgiving dinner with her and my niece and my daughter. I'll remind myself of all that I have to be thankful for, and look forward to seeing my BFF this weekend. I'll breathe in and out. But, tonight, I feel profoundly alone, profoundly sad, and profoundly bereft.

Saturday, July 02, 2011

I'm Not Even Breastfeeding....

...and yet I feel compelled to jump into the fray. Because it's a big deal, apparently, this whole breastfeeding/formula fracas.

That's right...I haven't posted anything in over a month, and rather than write about something relevant to my life...you know, like about how I have pericardial effusion (fancy-schmancy term for fluid around the heart), and am now waiting to see a cardiologist. Instead, I'm going to write about this breastfeeding stuff.

When I was breastfeeding, the internet was still in it's fairly early days, and hardly anyone had blogs or got all their medical information online. Now everyone has a blog, and half of us diagnose ourselves via WebMD before we even make our doctor's appointments.

I was 22 when I had the midget. Young enough that I wasn't really prepared to be a mom, but old enough that no one saw me and went "Oh Em Gee, babies having babies!" Or whatever judgmental thing people say about teen moms. I was pretty big into the natural stuff, natural childbirth, breastfeeding. I figured I would have a baby the old fashioned way and feed her the old fashioned way.

I went ahead with the natural childbirth, but only because I got to the hospital four hours before the midget passed through my birth canal. About 30 seconds into pushing, I turned to the midget's father and said "I don't want to do this anymore." It didn't help that during the hours leading up to the pushing stage the midget's father would look at the monitor and say, "Oh, you're having a contraction, and it's a big one!" And I was all...no shit, Asshole. Because being in labor makes you say stuff like that. And frankly, being me makes you say stuff like that.

So, there I was set to breastfeed this child. I'd read a couple of books, so I totally knew how to do it, right? Wrong. First of all, the midget had low blood sugar at birth and so she needed to be fed...and even if we had been able to manage that whole breast feeding thing, the first couple of days after the birth, a woman's body only produces colostrum, which isn't high in sugar. So, she had formula, and they brought a breast pump in for me to use. Only this was nearly 12 years ago, so it was huge, not one of these cute "comfortable" pumps. It was a monstrosity. But we got through it and by the time she left the hospital her blood sugar was fine and we were breastfeeding sort of. We got through it, especially once my milk came in and we both got the hang of it...only...

I hated breastfeeding. It was "icky." I was 22 and breasts were for fun, not for producing dairy products. But, I persevered. I figured we'd get to a point where I was having those beautiful bonding moments mentioned in every book I read. But it never happened. Every day that I breastfed the midget, I hated it. I was grumpy, and uncomfortable. I had a nasty case of the baby blues, which I still haven't really ever talked about with anyone. I've alluded to it with a few friends, but it was dark. I imagined driving away and leaving my baby with somebody, anybody, sometimes even nobody, as long as I could leave...and that was on good days. I can't bring myself to type the thoughts that went through my mind on bad days. Some day, maybe with therapy...but not now.

Needless to say, the postpartum depression didn't help the breastfeeding challenge. Which is why, when I read this little article tonight, I got furious. When the midget's doctor decided to switch her to soy formula because she was lactose intolerant and that meant no more breast milk, I was thrilled...and I felt like the worst mother in the world. What was wrong with me that I didn't love breastfeeding? Didn't I love my kid?

I just don't get articles like the one I linked to above. How does choosing to feed your child something that is perfectly healthy and formulated perfectly for infant nutrition wrong? Yes, I get it that breastfeeding imparts natural immunities and I'm sure there are women right now judging me and blaming the midget's Type 1 diabetes on her not being breastfed (despite there being no link between formula or breast milk and Type 1 diabetes...so neither is to blame for diabetes, though not breastfeeding does seem to be linked to obesity rates in older children which can lead to type 2 diabetes). But I agonized over hating breastfeeding. I hated that I hated it...that and my not infrequent wish that the squalling midget was far, far away and I was a footloose woman with lots of freedom made me insecure about my parenting for years.

Perhaps not coincidentally, the postpartum depression disappeared not long after I stopped breastfeeding. Once I had no choice but to bottle feed the midget, I could enjoy her feeding times (well, except for the smell of that god-awful soy formula...blech), and because I didn't feel like a walking dairy, I didn't resent her as much. But I couldn't admit to other people that I was glad not to have to breastfeed anymore, because I knew how they'd judge me.

Since then, my most beloved Archaeogoddess has had a child, and we've discussed breastfeeding, including the fact that I hated it. She found an article that showed that there may be a hormonal imbalance that causes some women to dislike breastfeeding. See, because in the natural order of things, breastfeeding is supposed to trigger a hormonal response that causes mother/infant bonding. I was clearly a freak because that didn't happen for me. Or so I thought. And, frankly, the Archaeogoddess is the first person I ever told about my dislike of breastfeeding that didn't automatically think "Bad Mother." Of course, the Archaeogoddess is my go-to person any time I need to talk about something that could potentially cause someone to judge me. Because she doesn't. She doesn't look at me and think "Bad Mother" because I hated breastfeeding...she thought, huh, that's different, maybe there's a reason for that...and it's one of the eight gazillion reasons I'm blessed to have her as my best friend.

Mental illness issues are difficult, but when you don't have someone like the Archaeogoddess in your corner, not judging you it's even worse. I know I'm lucky...I cannot imagine how many women read articles like the one I linked to above and think, what the fuck is wrong with me, and I should just keep my damn mouth shut about hating breastfeeding, or even the idea of it, and unlike me, they don't have a best friend who will simply say, "OK" when being presented with clear evidence that according to the La Leche League their best friend is THE. WORST. MOTHER. EVER.

I get the judging thing, I do...there are times when I see parents giving their tiny monsters everything they want and never saying no, and never disciplining and I think they are the worst parents in the world...or the parents who do just about anything that's going to have a long term impact on a child's ability to function in society, I totally judge them. But judging a parent because they give their child a perfectly healthy substitute for something I choose to feed my kid? No fucking way. And frankly, since I get people evaluating the midget's general diet all the time now (because you know, they are experts on Type 1 diabetes, and they are sure that my kid can't have that diet soda I just gave her, or that candy I just gave her), I almost think I'm more sensitive about the breastfeeding issue now than I was then.

Yes, in a perfect world, every baby would have breast milk, and mothers who have an aversion to breastfeeding could buy or get breast milk donated to them easily. But, we don't live in a perfect world, and there are plenty of mothers who have to choose between their antidepressants and breastfeeding, or other medications and breastfeeding, and they shouldn't be judged for that. It isn't as though they are depriving their child of adequate nutrition. So, shut the fuck up about it. It isn't any one's business what nutritionally sound food you are giving your child. I mean, fine, if you know someone who is filling their kid's bottle with vodka, go ahead and get involved, but even if you think formula is the last thing that would ever cross your baby's lips, it's not your fucking business what that other mother is feeding her kid, or why. Let's focus on the babies who are getting nothing to eat, or the mothers who are watering down formula because they can't afford enough formula, but let's educate them, not judge them, or even better, if you are breastfeeding and you think it's essential for all babies to get breast milk, make yourself part of the solution, find someone in your community raising an infant that's addicted to crack, or a mother who has HIV, and can't breastfeed, and donate your breast milk. And don't go around thinking that the ability to produce milk makes you a better mother than I am...any fucking mammal can produce breast milk, so doing so doesn't make you a good parent, any more than it makes an alley cat a good mother.

Wednesday, May 18, 2011

Blog for Mental Health Day.

I logged into Twitter today to see so many of my Twitter peeps (Yes, I have peeps...and no, I don't care what you say, I'm not too white to have peeps or say that I have peeps) linking to blog posts about mental health. Apparently, today is blogging for mental health day. Thank God for the Twitter, or I'd never have any fucking idea what day it is.

I found this oddly appropriate as I'm desperately trying to hold off an imminent panic attack, and as it turns out, since I only take my atavan when I'm having a panic attack, I didn't know I was out of them. So...no calming drugs for me, and I have to get through this one on my own. It's not the end of the world, I've done it before, many, many times. But expecting to be able to reach for relief only to find it's not there is disconcerting to say the least.

I've talked before about my bipolar disorder, how the highs make me chatty, keep me up, can aggravate me or turn me into someone who snaps over every little thing, and the lows keep me locked into myself, too sad, too miserable to talk about it. It sucks and I hate it...but given a choice, I'd take bipolar over the anxiety disorder any fucking day of the week.

Anxiety disorder makes me...well, it makes me anxious..but it's so much more. I feel like I can't breathe, my clothes, my skin are too tight, and are suffocating me. My heart pounds, my brain (never really all that slow or rational to begin with) races at lightening speeds with every paranoid thought you can imagine. I've seen numerous therapists and a couple of shrinks, and the general consensus seems to be that the anxiety is a holdover from a childhood so awful that I spend everyday in a state of anxiety, and, as it turns out, these responses become habituated in your brain chemistry, so now...even though I haven't had the cause for the anxiety in over 20 years, even though the main perpetrator in my childhood nightmare is dead and buried, I still get these bursts of panic.

I've tried everything...meditation, exercise, biofeedback, medication...nothing works. Nothing has managed to put a stop to the panic attacks. I take a medication that makes me so that I'm not so anxious I can't leave my house most of the time, but for these burst of adrenalin that kick off the panic? Nothing works because there isn't a pattern or a trigger (though sometimes thinking too much a panic attack can induce one). Most of my panic attacks occur in the middle of the night. I'm either suffering from insomnia and find myself freaking out...or, far worse, I wake up from a dead sleep in the grips of a panic attack. In those moments, the only thing that helps is the atavan. Otherwise, I doom myself to an hour or more of panic...and it sucks, my friends.

By far, the worst panic attacks are the ones that happen in front of other people. My brain just plays the same thought over and over..."What will people think of me?" I've avoided large gatherings for years just to avoid the chance that it might happen in front of other people. Because, I'm already the crazy one...how bad would it be to be even crazier? Even though the people I'm usually around are family or beloved friends, the idea that they would see me that way? Terrifying. Worse still? That those I love would know just how screwed up I am. Used to be I only talked about this with the exgirlfriend...and occasionally my beloved Archaeogoddess.

In recent years I've been trying to be more open...talking about it here, making jokes about it, because that's how I handle things. And, frankly, the fear monster doesn't seem so bad if you can laugh at it.

I know how hard it is for me to talk about, and I'm one of those people who has no problems discussing just about anything else. Pelvic exam post, anyone? So, if it's hard for me? How much harder for other people...you know, people who have filters?

It's time we take the stigma off of mental health. Just like with my Fibro, Grave's and various other illnesses, I didn't ask for this. I didn't make my brain betray me in the worst possible ways. It's time that we stop looking the other way when people we love are in trouble because we don't want to embarrass them. And it's time for us to stop being so damn uncomfortable with mental illness that we write off friends and loved ones who self-medicate as attention seeking addicts. Mental illness affects not just the one who's sick...it affects everyone around me. And pretending like it doesn't can lead to tragedy.

I'm blogging for mental health today. How about you?

Mental Health Blog Party Badge


And for the record...that panic attack I was talking about? Just writing about it helped so much...maybe I'll try to remember that the next time I wake up feeling like I'm going to crawl out of my skin.

Sunday, March 27, 2011

I Need Help

No big secret to anyone who's read so much as a single post here, right?

But, in reality, I do need help, actual physical help. I was never the world's greatest housekeeper, but since getting sick that's gotten much worse. I used to have regular cleaning binges, and if someone was coming for a visit, I could do the twenty minute clean and have my house be halfway decent...you know, as long as no one checked my closets or looked under the couch cushions.

The sicker I've gotten, the worse the arthritis and the worse the fatigue has gotten, the more sporadic my cleaning binges have become. Most of the time my house looks like a giant picked it up and shook it. There's crap everywhere, and laundry...dear god, don't get me started on the laundry.

The midget is a good kid, but she's a kid, and unfortunately has inherited my innate messiness and laziness. She takes advantage of the fact that I'm too tired to stay on her and push her to clean up after herself. She also takes advantage of the fact that my memory is a sieve these days and if I ground her in the morning I rarely remember that by mid afternoon.

When the midget's dad shows up to pick her up he makes it clear he disapproves of my slovenly nature. Of course, he isn't sick and taking care of a kid full time 24 hours a day, and even my four days a month minus the kid have shrunk down just a few hours once a week because the exgirlfriend has finally hurt the midget to the point that she refuses to see her at all. Which presents difficulties because, after all, the exgirlfriend is still living in the midget's father's house...the one his parents own.

Yeah, my kid isn't able to go visit her dad at the house her grandparents own. Awesome.

So...my few hours without the midget are spent sleeping, or doing homework, trying to get caught up on the things that are hard to do when a child, even one as old as the midget, is around. So..my old habit of resting the entire first day she was gone, and housework or schoolwork on the second...that's out the window...you know...along with my sanity...and my hopes for ever seeing her bedroom floor.

I know I need to ask for help. Ask my cousins, my sisters...my mom. Any of them would be willing to put on gaiters and wade through my mess and help me clean it. But I CAN'T ASK FOR HELP. I don't know why. I only know that it's common amongst people who suffer from chronic illness. There are so many amorphic offers of help, but no concrete..."Let me do this." "I am willing to do this." And asking for help feel like such an imposition, to do the things I should be able to do, even if I never really liked doing it in the first place. And worse, it feels like it makes the illness more concrete, more real.

Which is, simply, ridiculous. But I excel at the ridiculous, don't I? It's my forte. Because, refusing to acknowledge it's effect on my life doesn't lessen the impact, it only compounds it, because I wait until hope comes in late, comes in after the mess has completely demoralized me.

My cousin, the one who I'm always helping with a paper, or childcare or organizing or sorting laundry...she finally made me a concrete offer to help me clean my living room and kitchen. I had her for an hour and the front of my house, the largest part of my home, is now clean...I am not embarrassed to have company, not afraid the midget's father is planning another called to Children's Services, rather than offering help himself.

I need help...and I need help asking for help...

Saturday, February 12, 2011

Baby, baby, baby...

I'm going to let you in on a little secret. I don't like other people's children. I never have. I'm the girl who doesn't think your little darling throwing himself on the floor in the middle of the store to get that toy is cute. And I think you're a jerk for subjecting me to his screams and his dirty, snotty face.

So, I was always like that...I babysat a few times, and my BFF the Archaeogoddess had a little brother ten years younger that I saw from time to time, and I didn't have the desire to punch him. So, given that I didn't really like kids, I didn't really plan on having them. But, then...uh...whoops...and there was the midget. And she was awesome. But I knew a lot of that is that built in biology thing, that moms are sort of programmed to love their kids. Which is good, because she wasn't an easy baby, and I'm not a patient woman. But I learned. I learned when to walk away, undeniably the single most important lesson I learned as a new mom.

But falling in love with the midget didn't mean I fell in love with all kids. I was still one of those women who didn't really like other people's kids. And since I was youngish when the midget was born, it wasn't like my friends had kids or anything. So, I loved the midget...but that was it. I liked the midget and other people's kids were annoying and frequently smelly and rude.

Okay, so then...I had a niece, and then another one, and then another one, and then a pair of nephews. And I finally fell in love with kids, at least these kids. I love them because they're my babies as much as the midget is my baby. I comfort them when they skin their knees, put them on time out when they bop their cousins, and make sure they talk to their mommas with the respect a mom deserves. In return, I get sticky hugs, pre-chewed food in my hand and that beautiful feeling when I walk into a room and one of them shrieks delightedly, "Auntie Doda!"

I've got babies on the brain tonight, in part because my beloved Archaeogoddess is getting closer to her due date, and it's killing me more than ever to be so far away, because I'm already in love with that baby, and I want to be there to see her come into the world, but also because my youngest niece is coming to visit with the fam this weekend with her grandma. Because her momma, my baby cousin who has been in some pretty dark places, stopped taking the medication that makes her capable of functioning and she's back in the hospital, and I don't know for how long, but I'm so beyond thankful that she checked herself into the hospital and that she's getting the help she needs, because that baby needs a momma, and I'm not interested in losing one of my cousins.

I still don't know if I like kids, necessarily, but I do know that certain kids have the power to steal my heart. I know that I'm thankful that my youngest niece has the family she has to shield her and cocoon her now while her momma is going through the dark times again. I know that I love a baby who hasn't even been born yet, just as I love the midget and her cousins and I know that my life would be a sadder, darker place without the babies I love so much, and I know from my own struggles with the darkness, that there's no better incentive in the world to fight the depression than your children. So, while I'm thankful for my baby niece for her own precious little self, I'm beyond thankful that she is here to give her momma a damn good reason to fight and get through this, get the help and get better.

Tuesday, February 01, 2011

Just Another Manic Monday...erm...Tuesday...

Let’s talk mania, my friends. The flipside of my bipolar coin. When I was healthy, before walking was a tortuous task, I’d use my mania somewhat productively…clean something while listening to my iPod, do something, anything. I’d do anything to keep my mind from torturing myself…shop, talk, eat, have sex…anything.

But, now, with this body of mine that betrays me, with my responsibilities toward Cass, know I can’t just take off and do something crazy, even if my body cooperated. So now, I lay in bed at three in the morning, my mind racing, replaying conversations from years ago, thinking of all the things I’ve said, or should have said, or wish I hadn’t said.

I lay here in my bed, my brain racing, my body tensing slowly, insidiously, until every muscle is locked, every joint Is tensed and I’m nearly crying from the pain. So, I breathe, try to clear my mind, and relax minutely, and then before I know it, I’m tensed again…teeth grinding, every muscle locked in agony.

I hate it, I hate this. I hate going over and over the end of the relationship with the exgirlfriend, I hate replaying conversations with the midget’s father over and over. I hate remembering every hateful word anyone has ever said to me, but I do it. I dwell on fights I’ve had, I dwell on the ways I’ve hurt people or people have hurt me. I hate remembering every dirty horrible moment of my childhood, I hate remembering being scared and dirty and sad. But my brain won’t shut up. I can’t even read when I’m like this. Forming complete thoughts is nearly impossible. It makes me crazy. I just want it to stop.

In the past I’ve hurt myself, taken drugs, eaten everything I could get my hands on, just to spend an hour in the bathroom purging it from my body. I can’t do those things anymore, but I wish I could find a way to make it stop. I know hurting myself isn’t an option, but it makes it stop, makes my brain slow down so I can breathe, I can think and feel like myself again. I know I shouldn’t hurt myself…I know I shouldn’t, but I want to. So, instead I grabbed my laptop and I’m writing this…trying to reach out, trying to be out and open and honest so that maybe someone somewhere will read this and know that they aren’t alone, that it doesn’t just happen to them, and that each wretched manic night has an end, and it’s a reminder to myself that I am loved and deserving of that love, that people who love me will read this and understand me a little more.

Tuesday, October 05, 2010

Fuck off, Diabetes...

There will be no funny or witty in this post. I'm warning you now, and I'll likely take it down, but I need to get this out, need to know that someone in the universe is hearing me, and I need to do it in a place the midget can't see it. She doesn't read my blog. It's not allowed, and it's blocked on her computer. I do that so I can say nasty things about her other parents, post not so appropriate pictures of myself and have a corner of the universe that I don't have to censor myself in relation to her.

It's 1:30 in the morning, and we're having the worst diabetes week we've had since diagnosis. Insane blood glucose numbers, ever increasing insulin needs, ketone testing...and the endless blood sugar testing. My daughter is a pin cushion, and I hate myself each time I jam another needle into her skin, when she winces, but doesn't say anything, when it hurts badly enough that she says "Ow, that one hurt," it feels like razors cutting my heart to ribbons.

170 days since diagnosis. 170 days since I leaned against the wall in the hallway outside the emergency room and allowed myself the luxury of five minutes of tears. 170 days since I called the exgirlfriend and the midget's father in the middle of the night and told them to get to the hospital NOW! 170 days since I watched them strap my daughter to a gurney and load her into an ambulance. 170 days since I heard the term "PICU" and realized that's where my daughter was going. 170 days of trying to readjust to normal, and realize that nothing was ever going to be normal again.

170 means at least 700 finger pricks and 700 injections. And that's assuming that every day we only test four times and give four injections. Which never, ever happens. When she runs high, I give corrections, then check again to see if she's come down. When she runs low, I give sugar, then recheck to make sure she's gone back up. Not even six months in and she's had 1500 holes poked into her body.

I'm sitting here at 1:30 in the morning waiting for it to be 2am so that I can test her again, and then lay down and try to sleep, but I know that I will instead spend the rest of the night waking up every thirty minutes to make sure she hasn't gone low in her sleep, because she doesn't wake up when she goes low while sleeping, which could mean...I can't even bring myself to type the word, can't bring myself to use it in conjunction with my beautiful, precious daughter...but it would be bad, very bad.

On the other hand...when she runs high all night like she has all this week, I think about all that sugar in her blood, and the damage it's doing to her body, knowing that it's coating the blood vessels in her heart and her eyes and her kidneys, another layer of damage, bringing her that much closer irreparable harm. It sickens me, makes me physically ill, makes me want to scream and cry.

170 days of wishing that I could take her place for each finger stick and injection. 170 of wishing I could take away her diabetes. 170 of wishing there was a cure...

Saturday, July 24, 2010

I'm so Zen I'm Like Buddha...well...kinda...

You ever have one of those days where everyone you see and everything you do totally has a theme? That's been the last 24 hours for me. I just feel like I've had an epiphany or a break through...or maybe I'm just manic and haven't realized it yet...ah, the joy of being bipolar.

Anyway...the epiphany is this...No one can make me unhappy, unless I choose to let them. And that's the only power I have. That's it. I can either take your shit and let you treat me like crap and feel bad about myself, or I can love myself enough to say, you know what...Fuck you if you don't like me, if you think I'm too fat or too messy or too flighty. Whatever. That's your issue. It isn't mine, and I'm not going to take your issue on...Got it?

See, last night at about midnight I get an instant message from my cousin, who, from the magic that is Facebook, found her ex-fiance...the one that walked out and left her flat with no explanation, no goodbye....nothing. Just boom...gone. Well, turns out he's married, and she's cute and they look happy. My cousin, who I love dearly, is not a "glass half empty" person so much as she's a..."why is MY glass always empty" kind of person. As though everything in her life sucks and she's the only who has bad things happen.

Now, I love this girl, don't get me wrong. She's funny, and kind and generous and good...but she wallows a lot. I mean a lot...if something happens that's not what she wanted, she ignores all the good things in her life and says "Why does my life always suck? Why can't I have anything good?" Now, in fairness...she's a single mom, has some health issues and very little money (gosh, where have I heard that story before?), but on the other hand...she has an amazing family, a place to live, all of the necessities and quite a few luxuries...But she doesn't want to see that, she wants to focus on what's wrong. And I've been there...I've so been there. It's hard to drag yourself out of that place. It just sucks to be miserable all the time, and yes...it is a choice. Find a way to laugh, to inhabit your life so that when you look at what other people have, you don't ignore all that you have to wish for what you think they have.

Because that's the key isn't it? It's our perception. I told my cousin, yes, I'm sure they look happy in the pictures. Most people don't share the not so good times with the rest of the world. They want you to see the happy, everything's great moments, not the "my kid was up all night, and the dog peed on my only clean blanket and I got a flat tire" moments. Because we all have them, we just aren't interested in taking pictures. It's not a moment we want to keep.

Then tonight I was talking to another friend (that accommodating, picture taking friend, who we've decided to call Sam) and he was sort of having a wallowing kind of a moment, and I was totally on my soapbox with the same blunt realizations I'm giving myself and my cousin. And while I was chatting with him online, I was also watching a silly romantic comedy of the same theme...the "it's all in how you choose to see it" theme. It felt like the universe was just saying..."Yes, you idiot woman, you've finally got it."

Now, in fairness...there's a good chance I'm headed into a manic phase,and that in a week, I'll be all "boohoo, my life sucks" but I'm going to try and keep this centered in my mind, that it's all in the way you choose to live your life. If you've decided to be happy, and that nothing, not that flat tire or pissing dog or empty wallet, is going to ruin that happiness. And then maybe, just maybe...that'll be enough...

Tuesday, June 29, 2010

No Words...

I'm sad today...learned something last night that made realize the exgirlfriend as I knew her truly does not exist any longer. After all that's happened in the last year and a half, this final straw seems insignificant on the surface, but speaks volumes about how far she's come from the woman I once loved. It's not even worth explaining, as it doesn't really affect me or the midget, other than to make me realize that the exgirlfriend's choice to be less active in the midget's life than the midget's father is a blessing in disguise.

I've tried to write this post three times in the last 17 hours, and I'm still having a hard time finding the words to convey how I'm feeling. I can't even find a song that says what I can't...

So, instead, I'm going to post this youtube video of the current audiobook that is amusing me and the midget, because it's made of awesome. It's also in keeping with the vampire theme I've got going on today, since the younger sister is taking the midget and me to see the new Twilight movie...Yay for sparkly vampires...

Wednesday, May 26, 2010

Back On the Couch...

Back in therapy. Trying to deal with my shit, look my crazy demons in the eyes, then lay them to rest once and for all. A lot of things precipitated the move, but the biggest thing has been the midget. Dealing with her diagnosis, trying to take care of her alone...frankly, I can't be up all night wrestling with a brain that torments me endlessly, I just don't have the time.

I hate this shit, I should mention. I hate looking my craziness full in the face and trying to make sense of it. I hate taking apart my mistakes to see the motivations behind them, and (big surprise) I hate admitting my mistakes. If I knew how to say...Hmmm..fucked up, okay, learn from it and move on, admitting my mistakes wouldn't be a problem. Because I don't mind admitting I'm a fuck up and a flake and a high strung nut case. I am all of those things, and I can say that easily and honestly without batting an eye. But the individual things that I have done, words I have said that hurt people, that sucks. Because I basically have two settings...Ignore and Obsess. So, either I put it out of my mind and act like it never happened, or I play it over and over in my mind, analyzing each and every second, thinking of all the things I could have, should have said or done instead. I torture myself and berate myself, and my worst enemy could not tear me down the way I do when I Obsess.

And, I hate having to be honest. Because in real life I'm rarely very honest about how I feel. I'm flippant and dismissive and sarcastic. Admitting that I'm sad or scared or lonely...I don't like to do that, but therapy doesn't work if you aren't honest.

In that vein...the honesty vein..I'm posting this video. It's one of my all time favorite songs, something that's been in constant rotation for years, off and on, and back on right now in a big way. The song is beautiful and amazing, but the video, with Robert Downey Jr. doing his hot, soulful broody thing, really just makes it. I wish I had written this song, it says everything...

Tuesday, March 30, 2010

And On a Darker Note...

I've been absent from the blog for the last week. Obviously. Every time I would start a post, the words would stop and the fog that obscures my brain would take over and that nagging voice, the one that I can't turn off, the one that follows me around telling me how I can't do things, that I'm stupid and no one wants to read what I have to say, that voice takes over and when I'm that tired and the fog is weighing me down anyway, it's easier to give in and give up. I'm not proud of that, and that gives the voice strength, too.

See, what I don't talk about a lot is that in addition to my myriad physical issues, I'm also bipolar. And when I'm manic and up and laughing and talking any my brain is working full speed ahead, it's awesome. But, when I'm not manic...well...not awesome doesn't remotely begin to cover it. And hypothyroidism, fibromyalgia, hormonal imbalances and bipolar disorder are like this evil gang of square dancers that have their choreography down to a science. Any one of them can trigger a flare in one or all of the others. But, when the physical stuff sucks, at least my brain still works and I can laugh and talk and still be, essentially, me. The depression, though...that's a whole other animal, and it weighs me down and turns me into a zombie, and suddenly I'll realize that three days have passed and I've been on autopilot.

I did too much this weekend. The weather was beautiful, the midget had a softball game, there was family stuff going on, my little sister who I miss dreadfully, was staying with me...it was good. And then my body said...Whoa, there...hold on...this is too much fun and too much activity and the hour you spent in the sun is going to combine with all of the energy expenditures and every cell in your body is going to scream in agony and breathing is going to become so exhausting that it makes you want to cry, and then when you try to sleep you're going to have a panic attack because you're having tachycardia. And all of that slams me into depression faster than you can imagine.

I don't like to talk about it much. It sucks and it's sad and it just drags people down. And that voice, that voice that I can't shut out, is really good at convincing me that I'm alone, a freak...that everyone else is normal and no one will understand, so why even bother trying to tell them about it. And so I hide in my house, cobbling together what little bit of energy I can muster so the midget gets to and from school and gets dinner and clean clothes and homework help, and I stagnate and cry and then...I start to feel a bit better. Maybe I don't hurt so much, or I get a little sleep. And then I'll read something on one of my favorite blogs...usually The Bloggess (someone who actually gets the depression/anxiety thing and laughs about it) or see a good show, find a good book...something...and I'll the depression lifts a bit. And then bit by bit, it gets brighter. For awhile.

I'm surfacing right now, and starting to recover. Thankfully it's only been a day or two this time. I still hurt and I'm still exhausted, but the depression is lifting, thankfully.