If you're familiar with Dooce, you've heard her say that because she's crazy she doesn't hear and see things the way other people do. That someone can say something as innocuous as "Hi" and in her head, she hears something else...like, "I hate you." Yeah, I'm like that.
And I'm like that all the time, every day. And while I can carry on a perfectly normal conversation with you, and you will think I'm fine, but I hear something that for me, interprets to "I hate you, Laura, and also, you smell bad." I know, I know, that it's me and not you. I know that you think we're having a normal conversation and you have no idea that I'm dissecting every nuance of whatever it was that was said. I'm going over and over it in my head, hearing all the ways I am just not good enough to even be sitting this close to you, let alone presuming to talk to you.
So because I'm crazy, parenting has all sorts of room to reassure myself that I am, in fact, the stupidest person who has ever lived and shouldn't even be allowed to have spiders build their webs in my corners, let alone be in charge of raising a whole other person. For the most part, I manage to keep my crazy from impacting the midget too much. Because I know I'm crazy, while I will obsess over whether the midget will end up in a gutter somewhere, saying "If only I had a decent mother..." I also, am pretty good at keeping those fears to myself. Because, if I'm not careful, the midget will end up reassuring me (ME!). Which is not okay and is just going to lead into a whole other round of self-recrimination, that will lead to a downward spiral which will end with me sitting in a gutter...or throwing the midget into the gutter myself to prove to myself that I am, in fact, a horrible parent.
One of the most interesting (Did I say interesting? I meant mind-blowingly idiotic.) aspects of the crazy as it relates to parenting is that if I see someone on the television doing something stupid, I immediately wonder about how his or her parents feel about it. It's why, to this day, I can't watch Jackass or any of the stupid spin-offs spawned by it. Every time I see them doing those stupid, disgusting things, my inner mom thinks, "Please, please, for the love of all that is good in the world, let me be dead if the midget decides to ever do that and televise it."
It also leads to me telling the midget not to do things. A girl get bullied online in a Lifetime movie? Clearly this calls for an hour long discussion about what to do if she's bullied online, and what will happen if I ever find out that she's been bullying someone. And Teen Mom? Please. There isn't enough Xanax in all the world to allow me to sit through that one.
Needless to say, the midget is used to being instructed not to blow up buildings or dismember people or wear dirty underwear, just depending on what we're watching. However, I apparently offended her intelligence tonight. We were watching a show about BASE jumping, as I turned to her to say "Please, don't ever go BASE jumping." She got that look that all parents of adolescent girls know and hate so well and said "Really? Really, Mom? You're going to tell me not to go BASE jumping? Really? How stupid do you think I am?"
I couldn't decide whether to smack her or laugh....kinda like most moments with a 12 year old, really.
Showing posts with label the midget. Show all posts
Showing posts with label the midget. Show all posts
Monday, June 18, 2012
Sunday, January 15, 2012
Wherein I Whine About Being Sick
It's been a long time. I've been in hiding, both here on the blog and in my own life. I've been in pain, been anxious and depressed. I'm currently waiting to feel well enough to go and help one of my cousins with a dehoarding project. Ironic, that I'm the one trying pull myself together to help someone else clean their house when my house looks like someone dropped a small bomb in the living room.
There was a SCENE last night. In capital words with screaming and tears and accusations. We've had this weekend in the works for awhile, my cousin collects stuff in a major way...clothes, movies, crap...just tons of stuff. Shoes she doesn't and will never wear, clothes in sizes way too small that she hopes to fit one day. It's depressing. And this, from me, the queen of the messy house. My mess, though is of a life lived now...not for the someday, "if" future.
Anyway, earlier this week there was an accident...Lily, the rat terrier I've been fostering for months pushed Charlie under the car as I was coming down the hill from my aunt's house. He has a broken pelvis, but with rest he should make a complete recovery. However, it was touch and go, and because the emergency vet didn't get a great x-ray, I spent the weekend thinking I was going to have put Charlie to sleep. It was so scary and awful. Charlie is my baby, my boy...my best friend (well, after the Archeaogoddess, of course). He got me through the break up with the EG. He's the one who is there at night when I'm hurting, when I'm up all night testing the midget's blood sugar, when I have a panic attack and can't find my pills. I love him, and the thought of losing him was killing me.
So, as I've mentioned before stress makes everything worse. Stress causes major flares. I've been flaring all week, and then on Thursday night, the midget had soaring blood sugars that wouldn't correct (fucking adolescent hormones collide with fucking diabetes) and I was up all night...so by Friday morning, I was done in. I slept nearly all day. I was supposed to do my grocery shopping for the meals for this dehoarding weekend, but since I couldn't hardly walk to my bathroom, grocery shopping was out.
So, that led to yesterday, which was nearly as bad as Friday. I was in agony (oh and did I mention the part where my doctor took two days too long to refill my pain meds, so I spent a day in narcotic withdrawal this week, too) and exhausted, but I finally dragged my ass out of the house at around 2 in the afternoon and headed to the grocery store and did not only my shopping, but shopping for the cousin we are dehoarding as well. I had sent a note to my other cousin and my sister-in-law who were coming to help dehoard telling them that they'd better not back out, and I can't say that it was a nice note. I'm not in a good place, and I panicked because I thought that they weren't going to show up, and I've felt so responsible for the one cousin for so long, and I just can't take it anymore. I'm not making it on my own, and feeling responsible for someone besides the midget is wearing on me.
So, of course, the fact that I made a big fuss and then wasn't able to come through didn't go over well. I walked in to a very hostile situation. My cousin was furious that I hadn't made it there earlier, that I didn't call all day and let her know that I wasn't going to be there until then. (Not the cousin we're trying to dehoard, but the other one.) She called me a liar, said I wasn't sick, that I just chose to flake, that I could never be counted on, that I take advantage of everyone.
I flipped. I told her she was a selfish bitch who takes advantage of her sister, and only cares about herself and that I was done. I wanted to leave. I was hysterical at that point. It was an echo of everything that the EG had said to me. It's my constant fear...that people think I'm making this up, that I'm choosing to stay in bed, choosing to not do all the things I want to do.
And then I wonder, how the hell can anyone think that. I was always a flaky bitch, it's true...but I was a flaky bitch who did stuff. I hiked and camped and went on road trips and cleaned my house and went out for dinner with friends. And I'd sell my soul to be that girl again. It kills me when I have to cancel on something because my body defies me. I'm so tired...and it's not the good tired of knowing you've accomplished something. It's an exhaustion that is painful. Breathing takes effort. Typing hurts...not just my joints, but the tips of my fingers, my skin actually hurts.
My sister-in-law made me stay, insisted we all talk it out. And we did, for an hour...but I don't think I made any headway making it clear that I'm sick. That Lupus is real...that I don't choose to stay in bed, that I don't choose to give up everything that matters in my life. There were lots of tears and accusations.
Following, as it did, on this hell of a week, needless to say it didn't help the flare. I'm beyond useless today. The pain pills aren't touching the pain today. I want to scream and cry and I'm holding it together for the midget's sake. I'm contemplating a trip to the ER for a pain shot, but I am terrified to ask anyone for a ride. I can't bear to hear again how I let them down, how I let everyone down all the time, and that even this is just to make people believe me.
And it's stupid. My doctors verify that I'm sick. I know I'm sick, but it took so long to get anyone to believe me that I'm still scared that I'm just crazy, that it's all in my head. This is what chronic illness is, this is what invisible diseases do. I want to wear a sign that says I have Lupus, and Fibromyalgia and RA and no thyroid, and bipolar disorder and panic disorder and it causes me extreme pain and fatigue and a million other symptoms. And the worst part of it...the very worst thing is that I'm never going to get better. I mean, hopefully someday I'll have some sort of remission, or I'll find the right cocktail of drugs to get my symptoms under control, but I'm not ever going to be healed, it will always be a part of me, and looking into the future 30, 40, 50 years down the road and knowing that it'll always be this way...that alone is enough to make me want to burrow down into the bed and never come out...but I do.
Anytime I have any strength I do get out of bed, and I do what I can. I try to live my life the best I can in the gaps between the bad days, the bad weeks, the bad months. I hate that I can't be a good friend, a good cousin, a good mom. I want to apologize for myself all the time, to apologize for the disease, and then I feel like, I'm the sick one, shouldn't someone apologize to me, shouldn't someone come and help me?
I hate being sick, I really fucking hate being sick.
Wednesday, November 23, 2011
Profound
It's been a rough week. Very, very rough.
I woke up on Friday with a sore throat, feeling slightly congested. I was irritated. A cold? The flu? Why? And why now? My BFF, the Archaeogoddess, is here, in our tiny hometown. For the first time in four years, we are on the same continent, just minutes from each other, and I have big plans to spend a lot of time with her. As much as I can manage. I want to grasp every moment I possibly can. I want to chat with her husband. And I desperately want to meet her baby daughter. It is agony to have your best friend have her first baby when she is so far away. So, I resolved...I just would not get sick. That's all there was to it.
Bring on the tea, and the rest. Think positive.
Useless. Of course.
Saturday I felt worse and by Sunday, I knew it was Strep at best, though I began to suspect it might be worse. I knew I had a doctor's appointment on Tuesday, so I thought I'd suck it up and hold out until then. One of the big disadvantages of small town life is the lack of an Urgent Care facility. Basically, if you can't get an appointment with a doctor if you need one quickly, your only other choice is the Emergency Room. I've been told time and again not to wait too long before making this choice. Doing so puts me in a bad place. My pain levels grow, my exhaustion deepens, and my immune system, always wrong, always misfiring, will completely go haywire.
Monday was horrible. I had a fever. I also had an afternoon planned with the Archaeogoddess her husband and Spawn. But, besides the risk to the sixth month old baby, The Archaeogoddess' brother has just recently had chemo, and though he is now cancer free, his immune system isn't in great shape. I can't justify the risk of that exposure, so I cancelled. And then I hung up the phone and cried. I sobbed and hurt so much. I hadn't felt like that since...well....since the god awful break up with the EG. Maybe not even then. I just felt so angry and hopeless, and so completely and utterly sad.
Being chronically sick has robbed me of so much, and now it's stealing the few precious hours I have to be in the same room with the person I love most in the world, after the Midget. I got home that day from having to accompany my cousin and her daughter to the dentist (long, long story) and took a short rest and woke up and realized that waiting just the 18 short hours to the following morning's appointment was a bad idea. My chest started hurting and I was coughing up green mucus. I could not wait.
At the ER, I was lectured about waiting and diagnosed with bronchitis and a sinus infection. I was given high dose antibiotics, a pain shot and a higher script for prednisone for the week. I went home dejectedly, and a little giddy from the pain shot, and called the Archaeogoddess and told her I'd have to put off the visit, and what with Thanksgiving and all, I might not be able to see her until Saturday.
This morning's doctor's appointment was for my disability paperwork. My doctor wanted to see me before he filled it out, to really get a clear idea of my physical state as it applies to tasks... It was entertaining to hear him complain about the hoops that someone who is sick has to jump through to get the help they need. And then he said something to me that he'd never said before. He looked me in the face and said "In my opinion, you have a profound level of disability."
Profound: a : characterized by intensity of feeling or quality
b : all encompassing : complete <profound sleep> <profound deafness>I know this. I know that I am unable to do more than the simplest tasks without exhaustion, pain and weakness. Grocery shopping requires two days of rest beforehand, and at least three days of recovery afterwards. Some days, simply showering takes all the energy I have. This has been my reality for quite some time now. And yet...hearing it from a doctor in that definite, declarative fashion was like a kick in the stomach. It literally took my breath away. This is real. I am disabled. A vindication of sorts after years of begging doctors to just figure out what's wrong. And a deep sense of loss.
When I remember the person I was before all this started...it hurts. I miss my old life, my old self, in a physically painful manner. I miss my friends, I miss having a social life. I miss hiking and camping. I miss working, and feeling like I did something that mattered. I miss being able to clean my house from top to bottom in one day. This is what being sick has taken from me.
I know, though, that I am blessed in so many ways. I have so many amazing people in my life who love me. I have my beautiful, fantastic daughter. I am not homeless. I can see and hear, and walk (as long as it's not too far, doesn't have anything to do with stairs and hills and I can rest when I'm done) and talk. It could be worse. But, that knowledge doesn't really make it easier to be sick.
Thanksgiving is my favorite holiday. I love the food, the family. I love the sense of tradition in our family on that day, being together, laughing and enjoying each other's company without the stress of Christmas and all it's commercial burdens. I usually cook the vast majority of the meal. This year, however, I am making only stuffing and rolls. I won't be up early in the morning to get the turkey in the oven. I won't be cutting and peeling sweet potatoes or mashing regular spuds. And I'm pissed because I love doing those things, but I just can't. If I want to have a fighting chance at being able to have a party for the Archaeogoddess on Saturday, I have to rest and conserve energy. I have to accept the reality of sitting on the couch with my heating pad while others cook.
I am so sad. I feel hollowed out and bereft.
Tomorrow, I'll get up, get dressed and smile. I'll go to my sister's house and enjoy a Thanksgiving dinner with her and my niece and my daughter. I'll remind myself of all that I have to be thankful for, and look forward to seeing my BFF this weekend. I'll breathe in and out. But, tonight, I feel profoundly alone, profoundly sad, and profoundly bereft.
Saturday, November 05, 2011
Crazy With Anger
I live in a small town. A very small town...actually a collection of small towns referred to by residents and former residents as "The County." Yes, we capitalize it because it's a proper name, you see.
One of the benefits of living in a small town is that you are always running into people you know. This means people stop their cars in the middle of the street to chat, that we say "Hi" and give hugs in grocery markets. It also means if your battery dies or you have a flat tire, if you wait a few minutes someone you know will be along and you can get some help. It also means you see your ex a lot...or your ex's ex.
I try to think of myself as an essentially good person. I don't always succeed in thinking of myself that way, but I usually do. I try not to hurt people, and when I do hurt someone, it's usually unintentional, though I must admit to having a wee vindictive streak. This streak usually manifests itself in mostly harmless ways. I giggle when something bad happens to someone I don't like. Okay...I'll be honest. There are only three people in this world I actively dislike. The EG, her current wife, and the midget's former stepmother. And, unfortunately, they all still live in my county. Sightings have become rare because we just don't move in the same circles. The EG and her wife no longer have children attending the same school as my nieces, and I don't go out to the bars, where the midget's former stepmother hangs out.
However, because those sightings have become so rare, when they do, I kinda go crazy with anger. Thankfully, the more recent sightings have been while we're both in separate cars, I have managed to avoid any kind of major incident. I really don't need a criminal record at this point, and frankly, I'm pretty sure they could all take me. It's not exactly a difficult thing to do...I'm sort of fragile these days.
It's just....I don't wanna be that person. The crazy with anger person. I really need to believe that, deep down, I'm a good person. And good people don't go around assaulting other people, no matter how much provocation one might have endured.
I was listening to music tonight, as I usually do when I'm troubled by something, and I've got Don't Let Me Be Misunderstood by Nina Simone on repeat. And this is what's resonating with me tonight:
I'm just a soul whose intentions are good,
Oh, Lord, please don't let me be misunderstood.
So, yeah, while I may lunge out my window and offer a less than appropriate hand gesture, or spew epithets in their general direction, it's not as though I'm actively sabotaging them, or sending them envelopes full of Anthrax, and that's gotta count for something, right?
One of the benefits of living in a small town is that you are always running into people you know. This means people stop their cars in the middle of the street to chat, that we say "Hi" and give hugs in grocery markets. It also means if your battery dies or you have a flat tire, if you wait a few minutes someone you know will be along and you can get some help. It also means you see your ex a lot...or your ex's ex.
I try to think of myself as an essentially good person. I don't always succeed in thinking of myself that way, but I usually do. I try not to hurt people, and when I do hurt someone, it's usually unintentional, though I must admit to having a wee vindictive streak. This streak usually manifests itself in mostly harmless ways. I giggle when something bad happens to someone I don't like. Okay...I'll be honest. There are only three people in this world I actively dislike. The EG, her current wife, and the midget's former stepmother. And, unfortunately, they all still live in my county. Sightings have become rare because we just don't move in the same circles. The EG and her wife no longer have children attending the same school as my nieces, and I don't go out to the bars, where the midget's former stepmother hangs out.
However, because those sightings have become so rare, when they do, I kinda go crazy with anger. Thankfully, the more recent sightings have been while we're both in separate cars, I have managed to avoid any kind of major incident. I really don't need a criminal record at this point, and frankly, I'm pretty sure they could all take me. It's not exactly a difficult thing to do...I'm sort of fragile these days.
It's just....I don't wanna be that person. The crazy with anger person. I really need to believe that, deep down, I'm a good person. And good people don't go around assaulting other people, no matter how much provocation one might have endured.
I was listening to music tonight, as I usually do when I'm troubled by something, and I've got Don't Let Me Be Misunderstood by Nina Simone on repeat. And this is what's resonating with me tonight:
I'm just a soul whose intentions are good,
Oh, Lord, please don't let me be misunderstood.
So, yeah, while I may lunge out my window and offer a less than appropriate hand gesture, or spew epithets in their general direction, it's not as though I'm actively sabotaging them, or sending them envelopes full of Anthrax, and that's gotta count for something, right?
Friday, September 30, 2011
My Music
A million years ago, when the midget was a mere babe in arms, and the EG (from now on, the exgirlfriend will simply be referred to as EG)and I had just started dating (for lack of a better term), we were young, and energetic, and my body hadn't yet betrayed me. We were able to stay up all night talking, listening to music and still handle the rigors of baby duty the next day. We also went on road trips...sometimes for the day, and sometimes longer. Music was always always a big part of that. The latest cd from whatever indie artist we were obsessed with at the time in the cd player, and often we were on our way to show, or back from a show.
Whatever. It was always about the music back then. In many ways, I'm still that way. I'm a notorious dictator when it comes to the music in my car, or any car I'm driving. I try to drive as much as possible just to be able to be the one who controls the stereo. Even if I have similar music tastes as the other people in the car, I want my music, not their version of the same songs.
I was big into mix tapes, and then cds, back in the day before my iPod came into my life. There's not a radio station out there that plays what I love. I've even tried building a station on Pandora to hear new stuff that might interest me. But, either I'm just really, really picky, or I somehow short circuit Pandora's algorithms when I type in Waylon Jennings, Eminem, Melissa Ferrick, Ani Difranco, Britney Spears, Nine Inch Nails, The Eagles, The Mamas and The Papas, New Kids on the Block (yes, I hear you laughing) etc... Once, in my late teens/early twenties my entire cd book was stolen out of the car and I was sooo pissed. Because you know whoever stole it, flipped through it, went Huh? and dumped in the trash somewhere.
While I still listen to nearly everything I listened to in the early days of life with the midget and the EG, I obviously don't get to live shows very often. And this sucks, since some of the artists I love (Melissa Ferrick and Abandon Theory to name a few) are very independent artists whose music you won't hear on the radio or see on TV, so you would usually hear new music at their shows, and that's where you'll buy the cd for 10 or 15 bucks. These days, (since I'm a broke-ass bitch) I don't get to shows, and even if I did, I can't afford the cds. Most of what I listen to now I "borrow" from the internet. I dislike doing this for indie artists because the only way they can make money to keep playing the music I love is for me and their other fans to buy the music, and go to the shows. I don't feel guilty for downloading an old Nine Inch Nails album I used to have, but either lost or destroyed somewhere along the way, but I feel mucho guilt when it's someone whose very artistic career depends on the cds they sell. Trent Reznor will still be able to play and make music if me and a hundred others download his albums...Abandon Theory may not.
Anyway...I had a point back before my tangent, at least I think I did... I miss going to shows, or being able to buy new music. And an eensy little part of me misses having someone in the house who can play music. Not enough to ever date a musician again, but still...just a little. I guess I miss the spontaneity and the freedom of being young and healthy. It's been said before, by people a lot older than I, but youth really is wasted on the young. I would love to have a word or two with my younger self about squandering all those possibility filled days on the couch back in my younger years. Had I known I was going to run out of fuel so early...well...best not to focus too much on what I might have done, I suppose.
So, I don't know that I have a point, except to introduce the reason why I'm posting yet another video. I spent part of today cruising YouTube for music, and found this. It's live, which is pretty much the only way to listen to Melissa Ferrick, because even though she's an accomplished studio musician, there is something about her energy that doesn't translate. It may be why she never achieved widespread fame, despite an early recording contract with a "real" record label. It's called I'm Gonna Break Your Heart and it's emotionality is rough, but that's one of the things I love most about her music. I'd love to see her play again, but the closest she usually comes is San Francisco, a three hour drive away, and I doubt that anytime she's there I'll magically have the energy to drive all that way, then stand in line at whatever club she's playing, and then stand through the show, even supposing I could come up with the money to make it happen. However, should you find out she's in your city, you should go and see her play. She's sheer genius...brilliantly talented, fantastically educated, and not too hard on the eyes...
Whatever. It was always about the music back then. In many ways, I'm still that way. I'm a notorious dictator when it comes to the music in my car, or any car I'm driving. I try to drive as much as possible just to be able to be the one who controls the stereo. Even if I have similar music tastes as the other people in the car, I want my music, not their version of the same songs.
I was big into mix tapes, and then cds, back in the day before my iPod came into my life. There's not a radio station out there that plays what I love. I've even tried building a station on Pandora to hear new stuff that might interest me. But, either I'm just really, really picky, or I somehow short circuit Pandora's algorithms when I type in Waylon Jennings, Eminem, Melissa Ferrick, Ani Difranco, Britney Spears, Nine Inch Nails, The Eagles, The Mamas and The Papas, New Kids on the Block (yes, I hear you laughing) etc... Once, in my late teens/early twenties my entire cd book was stolen out of the car and I was sooo pissed. Because you know whoever stole it, flipped through it, went Huh? and dumped in the trash somewhere.
While I still listen to nearly everything I listened to in the early days of life with the midget and the EG, I obviously don't get to live shows very often. And this sucks, since some of the artists I love (Melissa Ferrick and Abandon Theory to name a few) are very independent artists whose music you won't hear on the radio or see on TV, so you would usually hear new music at their shows, and that's where you'll buy the cd for 10 or 15 bucks. These days, (since I'm a broke-ass bitch) I don't get to shows, and even if I did, I can't afford the cds. Most of what I listen to now I "borrow" from the internet. I dislike doing this for indie artists because the only way they can make money to keep playing the music I love is for me and their other fans to buy the music, and go to the shows. I don't feel guilty for downloading an old Nine Inch Nails album I used to have, but either lost or destroyed somewhere along the way, but I feel mucho guilt when it's someone whose very artistic career depends on the cds they sell. Trent Reznor will still be able to play and make music if me and a hundred others download his albums...Abandon Theory may not.
Anyway...I had a point back before my tangent, at least I think I did... I miss going to shows, or being able to buy new music. And an eensy little part of me misses having someone in the house who can play music. Not enough to ever date a musician again, but still...just a little. I guess I miss the spontaneity and the freedom of being young and healthy. It's been said before, by people a lot older than I, but youth really is wasted on the young. I would love to have a word or two with my younger self about squandering all those possibility filled days on the couch back in my younger years. Had I known I was going to run out of fuel so early...well...best not to focus too much on what I might have done, I suppose.
So, I don't know that I have a point, except to introduce the reason why I'm posting yet another video. I spent part of today cruising YouTube for music, and found this. It's live, which is pretty much the only way to listen to Melissa Ferrick, because even though she's an accomplished studio musician, there is something about her energy that doesn't translate. It may be why she never achieved widespread fame, despite an early recording contract with a "real" record label. It's called I'm Gonna Break Your Heart and it's emotionality is rough, but that's one of the things I love most about her music. I'd love to see her play again, but the closest she usually comes is San Francisco, a three hour drive away, and I doubt that anytime she's there I'll magically have the energy to drive all that way, then stand in line at whatever club she's playing, and then stand through the show, even supposing I could come up with the money to make it happen. However, should you find out she's in your city, you should go and see her play. She's sheer genius...brilliantly talented, fantastically educated, and not too hard on the eyes...
Saturday, August 27, 2011
Too Safe?
When it comes to your child's safety, can you be too safe? I've pondered this idea for awhile now, especially since so much has changed since the midget was little, so just the last 7-12 years, basically. When the midget was little, babies were supposed to sleep on their sides to prevent SIDS, but now they're on their backs again. Back-facing car seat until 20 pounds, and front-facing after that. The midget was in a front facing car seat at about four or five months, whereas now that's not legal or safe until a year of age. So, apparently the midget was unsafe for about 8 months. Horrible parent, aren't I?
And then, when she was 4, and well over the legal 40 pound limit, I stopped struggling with the car seat in the back of our tiny Hyundai. And now, the law says she wasn't safe until she was 4' 9" and 80 pounds. I was reminded of all this thanks to a fantastic rant by my beloved Archaeogoddess on the difficulties of car seats. And, because I'd just finished reading this I thought it was an interesting question, can our kids be too safe?
When I was growing up, we didn't have seat belts half the time, let alone car seats. Our moms put us on our tummies to sleep. Stranger danger was a newish concept, and the dangers of pedophiles were talked about only in cheesy after school specials, and yet, most of us grew up more or less okay.
When my oldest niece was born, I remember thinking that her mother was going to suffocate her because she was obsessed with safety. I held the child once in her baby days because I couldn't handle all the instructions--"Don't kiss the baby! We're too concerned about germs!" "Hold her like this, not like that!"--and on and on. I remember thinking, "Ya know, I've had one of these, and she's still alive and sound...that's her over there, remember?"
Not coincidentally, my oldest niece was plagued with colds and bronchitis that led to so many ear infections that she had tubes put in at the age of two. Her growth was also delayed due to her many illnesses. You see, when you don't expose a baby to germs, their immune systems don't get the strength they need that comes with the experience of fighting off small infections. Said niece, though I love her dearly, is also the most spoiled and willful of all the children, and that's saying something. She is a victim (for lack of a better term) of helicopter parenting.
Helicopter parenting, so common today, is my deepest fear for the children of the midget's generation. They are protected from everything, even the dangers of accepting their own failures...there are no longer winners and losers in games or competitions for the sake of saving the feelings of these precious little darlings, and I get it, I do. I know I hated it when the midget was sad because she didn't win at a game, or another kid didn't like her, but that's life. You aren't going to always be the winner, and not everyone is always going to like you, and that's easier to handle it when you learn how to deal with it an early age. It's very difficult to reach the age of 18 or 21 or whenever Mommy finally cuts the apron strings, if you don't know how to deal with all of those things. If you've always been protected, you don't learn how to protect yourself.
I am not saying put your kid alone in room with glass shards to keep them from leaving and fill their bottle with codeine cough syrup rather than springing for a babysitter. (That's what duct tape is for). Nor should you ignore the common sense stuff...vaccinate, use seat belts and car seats, and for the love of god, don't put their names on their backpacks and sweatshirts to make it that much easier for strangers to gain their trust. But, at the same time...let them get kisses from aunties, even if they catch a cold, let them skin their knees and feel the sorrows of coming in last. This world is not always safe and soft and protecting, and we aren't always going to be there to catch them, so they need to learn how to protect themselves.
Because, after all...in the end you are not raising a child. You are raising a person who will one day be a responsible adult, one that must stand on her own two feet, without the training wheels, without the bubble wrap, and without Mommy's sheltering embrace.
And then, when she was 4, and well over the legal 40 pound limit, I stopped struggling with the car seat in the back of our tiny Hyundai. And now, the law says she wasn't safe until she was 4' 9" and 80 pounds. I was reminded of all this thanks to a fantastic rant by my beloved Archaeogoddess on the difficulties of car seats. And, because I'd just finished reading this I thought it was an interesting question, can our kids be too safe?
When I was growing up, we didn't have seat belts half the time, let alone car seats. Our moms put us on our tummies to sleep. Stranger danger was a newish concept, and the dangers of pedophiles were talked about only in cheesy after school specials, and yet, most of us grew up more or less okay.
When my oldest niece was born, I remember thinking that her mother was going to suffocate her because she was obsessed with safety. I held the child once in her baby days because I couldn't handle all the instructions--"Don't kiss the baby! We're too concerned about germs!" "Hold her like this, not like that!"--and on and on. I remember thinking, "Ya know, I've had one of these, and she's still alive and sound...that's her over there, remember?"
Not coincidentally, my oldest niece was plagued with colds and bronchitis that led to so many ear infections that she had tubes put in at the age of two. Her growth was also delayed due to her many illnesses. You see, when you don't expose a baby to germs, their immune systems don't get the strength they need that comes with the experience of fighting off small infections. Said niece, though I love her dearly, is also the most spoiled and willful of all the children, and that's saying something. She is a victim (for lack of a better term) of helicopter parenting.
Helicopter parenting, so common today, is my deepest fear for the children of the midget's generation. They are protected from everything, even the dangers of accepting their own failures...there are no longer winners and losers in games or competitions for the sake of saving the feelings of these precious little darlings, and I get it, I do. I know I hated it when the midget was sad because she didn't win at a game, or another kid didn't like her, but that's life. You aren't going to always be the winner, and not everyone is always going to like you, and that's easier to handle it when you learn how to deal with it an early age. It's very difficult to reach the age of 18 or 21 or whenever Mommy finally cuts the apron strings, if you don't know how to deal with all of those things. If you've always been protected, you don't learn how to protect yourself.
I am not saying put your kid alone in room with glass shards to keep them from leaving and fill their bottle with codeine cough syrup rather than springing for a babysitter. (That's what duct tape is for). Nor should you ignore the common sense stuff...vaccinate, use seat belts and car seats, and for the love of god, don't put their names on their backpacks and sweatshirts to make it that much easier for strangers to gain their trust. But, at the same time...let them get kisses from aunties, even if they catch a cold, let them skin their knees and feel the sorrows of coming in last. This world is not always safe and soft and protecting, and we aren't always going to be there to catch them, so they need to learn how to protect themselves.
Because, after all...in the end you are not raising a child. You are raising a person who will one day be a responsible adult, one that must stand on her own two feet, without the training wheels, without the bubble wrap, and without Mommy's sheltering embrace.
Saturday, July 02, 2011
I'm Not Even Breastfeeding....
...and yet I feel compelled to jump into the fray. Because it's a big deal, apparently, this whole breastfeeding/formula fracas.
That's right...I haven't posted anything in over a month, and rather than write about something relevant to my life...you know, like about how I have pericardial effusion (fancy-schmancy term for fluid around the heart), and am now waiting to see a cardiologist. Instead, I'm going to write about this breastfeeding stuff.
When I was breastfeeding, the internet was still in it's fairly early days, and hardly anyone had blogs or got all their medical information online. Now everyone has a blog, and half of us diagnose ourselves via WebMD before we even make our doctor's appointments.
I was 22 when I had the midget. Young enough that I wasn't really prepared to be a mom, but old enough that no one saw me and went "Oh Em Gee, babies having babies!" Or whatever judgmental thing people say about teen moms. I was pretty big into the natural stuff, natural childbirth, breastfeeding. I figured I would have a baby the old fashioned way and feed her the old fashioned way.
I went ahead with the natural childbirth, but only because I got to the hospital four hours before the midget passed through my birth canal. About 30 seconds into pushing, I turned to the midget's father and said "I don't want to do this anymore." It didn't help that during the hours leading up to the pushing stage the midget's father would look at the monitor and say, "Oh, you're having a contraction, and it's a big one!" And I was all...no shit, Asshole. Because being in labor makes you say stuff like that. And frankly, being me makes you say stuff like that.
So, there I was set to breastfeed this child. I'd read a couple of books, so I totally knew how to do it, right? Wrong. First of all, the midget had low blood sugar at birth and so she needed to be fed...and even if we had been able to manage that whole breast feeding thing, the first couple of days after the birth, a woman's body only produces colostrum, which isn't high in sugar. So, she had formula, and they brought a breast pump in for me to use. Only this was nearly 12 years ago, so it was huge, not one of these cute "comfortable" pumps. It was a monstrosity. But we got through it and by the time she left the hospital her blood sugar was fine and we were breastfeeding sort of. We got through it, especially once my milk came in and we both got the hang of it...only...
I hated breastfeeding. It was "icky." I was 22 and breasts were for fun, not for producing dairy products. But, I persevered. I figured we'd get to a point where I was having those beautiful bonding moments mentioned in every book I read. But it never happened. Every day that I breastfed the midget, I hated it. I was grumpy, and uncomfortable. I had a nasty case of the baby blues, which I still haven't really ever talked about with anyone. I've alluded to it with a few friends, but it was dark. I imagined driving away and leaving my baby with somebody, anybody, sometimes even nobody, as long as I could leave...and that was on good days. I can't bring myself to type the thoughts that went through my mind on bad days. Some day, maybe with therapy...but not now.
Needless to say, the postpartum depression didn't help the breastfeeding challenge. Which is why, when I read this little article tonight, I got furious. When the midget's doctor decided to switch her to soy formula because she was lactose intolerant and that meant no more breast milk, I was thrilled...and I felt like the worst mother in the world. What was wrong with me that I didn't love breastfeeding? Didn't I love my kid?
I just don't get articles like the one I linked to above. How does choosing to feed your child something that is perfectly healthy and formulated perfectly for infant nutrition wrong? Yes, I get it that breastfeeding imparts natural immunities and I'm sure there are women right now judging me and blaming the midget's Type 1 diabetes on her not being breastfed (despite there being no link between formula or breast milk and Type 1 diabetes...so neither is to blame for diabetes, though not breastfeeding does seem to be linked to obesity rates in older children which can lead to type 2 diabetes). But I agonized over hating breastfeeding. I hated that I hated it...that and my not infrequent wish that the squalling midget was far, far away and I was a footloose woman with lots of freedom made me insecure about my parenting for years.
Perhaps not coincidentally, the postpartum depression disappeared not long after I stopped breastfeeding. Once I had no choice but to bottle feed the midget, I could enjoy her feeding times (well, except for the smell of that god-awful soy formula...blech), and because I didn't feel like a walking dairy, I didn't resent her as much. But I couldn't admit to other people that I was glad not to have to breastfeed anymore, because I knew how they'd judge me.
Since then, my most beloved Archaeogoddess has had a child, and we've discussed breastfeeding, including the fact that I hated it. She found an article that showed that there may be a hormonal imbalance that causes some women to dislike breastfeeding. See, because in the natural order of things, breastfeeding is supposed to trigger a hormonal response that causes mother/infant bonding. I was clearly a freak because that didn't happen for me. Or so I thought. And, frankly, the Archaeogoddess is the first person I ever told about my dislike of breastfeeding that didn't automatically think "Bad Mother." Of course, the Archaeogoddess is my go-to person any time I need to talk about something that could potentially cause someone to judge me. Because she doesn't. She doesn't look at me and think "Bad Mother" because I hated breastfeeding...she thought, huh, that's different, maybe there's a reason for that...and it's one of the eight gazillion reasons I'm blessed to have her as my best friend.
Mental illness issues are difficult, but when you don't have someone like the Archaeogoddess in your corner, not judging you it's even worse. I know I'm lucky...I cannot imagine how many women read articles like the one I linked to above and think, what the fuck is wrong with me, and I should just keep my damn mouth shut about hating breastfeeding, or even the idea of it, and unlike me, they don't have a best friend who will simply say, "OK" when being presented with clear evidence that according to the La Leche League their best friend is THE. WORST. MOTHER. EVER.
I get the judging thing, I do...there are times when I see parents giving their tiny monsters everything they want and never saying no, and never disciplining and I think they are the worst parents in the world...or the parents who do just about anything that's going to have a long term impact on a child's ability to function in society, I totally judge them. But judging a parent because they give their child a perfectly healthy substitute for something I choose to feed my kid? No fucking way. And frankly, since I get people evaluating the midget's general diet all the time now (because you know, they are experts on Type 1 diabetes, and they are sure that my kid can't have that diet soda I just gave her, or that candy I just gave her), I almost think I'm more sensitive about the breastfeeding issue now than I was then.
Yes, in a perfect world, every baby would have breast milk, and mothers who have an aversion to breastfeeding could buy or get breast milk donated to them easily. But, we don't live in a perfect world, and there are plenty of mothers who have to choose between their antidepressants and breastfeeding, or other medications and breastfeeding, and they shouldn't be judged for that. It isn't as though they are depriving their child of adequate nutrition. So, shut the fuck up about it. It isn't any one's business what nutritionally sound food you are giving your child. I mean, fine, if you know someone who is filling their kid's bottle with vodka, go ahead and get involved, but even if you think formula is the last thing that would ever cross your baby's lips, it's not your fucking business what that other mother is feeding her kid, or why. Let's focus on the babies who are getting nothing to eat, or the mothers who are watering down formula because they can't afford enough formula, but let's educate them, not judge them, or even better, if you are breastfeeding and you think it's essential for all babies to get breast milk, make yourself part of the solution, find someone in your community raising an infant that's addicted to crack, or a mother who has HIV, and can't breastfeed, and donate your breast milk. And don't go around thinking that the ability to produce milk makes you a better mother than I am...any fucking mammal can produce breast milk, so doing so doesn't make you a good parent, any more than it makes an alley cat a good mother.
That's right...I haven't posted anything in over a month, and rather than write about something relevant to my life...you know, like about how I have pericardial effusion (fancy-schmancy term for fluid around the heart), and am now waiting to see a cardiologist. Instead, I'm going to write about this breastfeeding stuff.
When I was breastfeeding, the internet was still in it's fairly early days, and hardly anyone had blogs or got all their medical information online. Now everyone has a blog, and half of us diagnose ourselves via WebMD before we even make our doctor's appointments.
I was 22 when I had the midget. Young enough that I wasn't really prepared to be a mom, but old enough that no one saw me and went "Oh Em Gee, babies having babies!" Or whatever judgmental thing people say about teen moms. I was pretty big into the natural stuff, natural childbirth, breastfeeding. I figured I would have a baby the old fashioned way and feed her the old fashioned way.
I went ahead with the natural childbirth, but only because I got to the hospital four hours before the midget passed through my birth canal. About 30 seconds into pushing, I turned to the midget's father and said "I don't want to do this anymore." It didn't help that during the hours leading up to the pushing stage the midget's father would look at the monitor and say, "Oh, you're having a contraction, and it's a big one!" And I was all...no shit, Asshole. Because being in labor makes you say stuff like that. And frankly, being me makes you say stuff like that.
So, there I was set to breastfeed this child. I'd read a couple of books, so I totally knew how to do it, right? Wrong. First of all, the midget had low blood sugar at birth and so she needed to be fed...and even if we had been able to manage that whole breast feeding thing, the first couple of days after the birth, a woman's body only produces colostrum, which isn't high in sugar. So, she had formula, and they brought a breast pump in for me to use. Only this was nearly 12 years ago, so it was huge, not one of these cute "comfortable" pumps. It was a monstrosity. But we got through it and by the time she left the hospital her blood sugar was fine and we were breastfeeding sort of. We got through it, especially once my milk came in and we both got the hang of it...only...
I hated breastfeeding. It was "icky." I was 22 and breasts were for fun, not for producing dairy products. But, I persevered. I figured we'd get to a point where I was having those beautiful bonding moments mentioned in every book I read. But it never happened. Every day that I breastfed the midget, I hated it. I was grumpy, and uncomfortable. I had a nasty case of the baby blues, which I still haven't really ever talked about with anyone. I've alluded to it with a few friends, but it was dark. I imagined driving away and leaving my baby with somebody, anybody, sometimes even nobody, as long as I could leave...and that was on good days. I can't bring myself to type the thoughts that went through my mind on bad days. Some day, maybe with therapy...but not now.
Needless to say, the postpartum depression didn't help the breastfeeding challenge. Which is why, when I read this little article tonight, I got furious. When the midget's doctor decided to switch her to soy formula because she was lactose intolerant and that meant no more breast milk, I was thrilled...and I felt like the worst mother in the world. What was wrong with me that I didn't love breastfeeding? Didn't I love my kid?
I just don't get articles like the one I linked to above. How does choosing to feed your child something that is perfectly healthy and formulated perfectly for infant nutrition wrong? Yes, I get it that breastfeeding imparts natural immunities and I'm sure there are women right now judging me and blaming the midget's Type 1 diabetes on her not being breastfed (despite there being no link between formula or breast milk and Type 1 diabetes...so neither is to blame for diabetes, though not breastfeeding does seem to be linked to obesity rates in older children which can lead to type 2 diabetes). But I agonized over hating breastfeeding. I hated that I hated it...that and my not infrequent wish that the squalling midget was far, far away and I was a footloose woman with lots of freedom made me insecure about my parenting for years.
Perhaps not coincidentally, the postpartum depression disappeared not long after I stopped breastfeeding. Once I had no choice but to bottle feed the midget, I could enjoy her feeding times (well, except for the smell of that god-awful soy formula...blech), and because I didn't feel like a walking dairy, I didn't resent her as much. But I couldn't admit to other people that I was glad not to have to breastfeed anymore, because I knew how they'd judge me.
Since then, my most beloved Archaeogoddess has had a child, and we've discussed breastfeeding, including the fact that I hated it. She found an article that showed that there may be a hormonal imbalance that causes some women to dislike breastfeeding. See, because in the natural order of things, breastfeeding is supposed to trigger a hormonal response that causes mother/infant bonding. I was clearly a freak because that didn't happen for me. Or so I thought. And, frankly, the Archaeogoddess is the first person I ever told about my dislike of breastfeeding that didn't automatically think "Bad Mother." Of course, the Archaeogoddess is my go-to person any time I need to talk about something that could potentially cause someone to judge me. Because she doesn't. She doesn't look at me and think "Bad Mother" because I hated breastfeeding...she thought, huh, that's different, maybe there's a reason for that...and it's one of the eight gazillion reasons I'm blessed to have her as my best friend.
Mental illness issues are difficult, but when you don't have someone like the Archaeogoddess in your corner, not judging you it's even worse. I know I'm lucky...I cannot imagine how many women read articles like the one I linked to above and think, what the fuck is wrong with me, and I should just keep my damn mouth shut about hating breastfeeding, or even the idea of it, and unlike me, they don't have a best friend who will simply say, "OK" when being presented with clear evidence that according to the La Leche League their best friend is THE. WORST. MOTHER. EVER.
I get the judging thing, I do...there are times when I see parents giving their tiny monsters everything they want and never saying no, and never disciplining and I think they are the worst parents in the world...or the parents who do just about anything that's going to have a long term impact on a child's ability to function in society, I totally judge them. But judging a parent because they give their child a perfectly healthy substitute for something I choose to feed my kid? No fucking way. And frankly, since I get people evaluating the midget's general diet all the time now (because you know, they are experts on Type 1 diabetes, and they are sure that my kid can't have that diet soda I just gave her, or that candy I just gave her), I almost think I'm more sensitive about the breastfeeding issue now than I was then.
Yes, in a perfect world, every baby would have breast milk, and mothers who have an aversion to breastfeeding could buy or get breast milk donated to them easily. But, we don't live in a perfect world, and there are plenty of mothers who have to choose between their antidepressants and breastfeeding, or other medications and breastfeeding, and they shouldn't be judged for that. It isn't as though they are depriving their child of adequate nutrition. So, shut the fuck up about it. It isn't any one's business what nutritionally sound food you are giving your child. I mean, fine, if you know someone who is filling their kid's bottle with vodka, go ahead and get involved, but even if you think formula is the last thing that would ever cross your baby's lips, it's not your fucking business what that other mother is feeding her kid, or why. Let's focus on the babies who are getting nothing to eat, or the mothers who are watering down formula because they can't afford enough formula, but let's educate them, not judge them, or even better, if you are breastfeeding and you think it's essential for all babies to get breast milk, make yourself part of the solution, find someone in your community raising an infant that's addicted to crack, or a mother who has HIV, and can't breastfeed, and donate your breast milk. And don't go around thinking that the ability to produce milk makes you a better mother than I am...any fucking mammal can produce breast milk, so doing so doesn't make you a good parent, any more than it makes an alley cat a good mother.
Saturday, April 30, 2011
Let's Not Focus on the Negative, Shall We?
Blurgh...blah, blah, blah...I had emergency gall bladder surgery followed by over six hours in which various and sundry nurses poked needles into my body trying to replace the IV which had fallen out, meaning I had no pain relief for six hours following surgery. Some 30 pokes with a needle later, a man showed up and put a PICC line in my arm. For those of you not familiar with this sort of thing...he cut a hole in my upper right arm on the inside...found one of my very uncooperative veins, and inserted a long tube that delivered saline and whatever meds the nurses saw fit to give me directly to my heart. So, finally, after six agonizing (worse than when I pushed the midget out of my girlie parts, without medication, and a bit longer as well), the PICC line guy walked in after the chest Xray that showed whether he had gotten the line in the right place and said, "Well, I have good news and bad news........(long pause in which I briefly considered quick and painless ways to kill myself without the three people in the room with me stopping me) The good news is there is no bad news." I thought my sister (who held my hair while I vomited from the pain and handed me cold cloths and kept the world updated and tried really hard not to cry herself) was going to launch herself over my bed and murder him. Finally they gave me the drugs and I cried with joy. Did I mention that my kid witnessed me vomiting from pain? Yeah, awesome.
But, here we are...a week after surgery and my staples have been removed, and despite the nasty stomach bug that's putting me through the wringer at the moment...I'm mostly okay. I've lost 15 pounds, and I'm covered in bruises from the many failed IV attempts, but I'm okay...well as okay as I usually am.
I've got an appointment with the Stanford Rheumatology clinic on Monday, and I'm really looking forward to finding a decent plan of treatment for my arthritis, etc...
Anyway, the good happy stuff is what I want to focus on. See, for the last few years I have been rat free. When my last rat passed away a couple of years ago, I decided to simplify my life a bit, and be rat free. Then, my niece bought a couple of pet store rats and against my very strenuous objections, mated them. The resulting two litters were more than she could handle, and the midget and I had been discussing the possibility (okay the midget begged and pleaded and I considered) of getting more rats, and so now we're a rat home again.
We've got three precious little dumbo ratties...one has curly rex hair, two are white and one has a light, champagne colored hood. They are only two months old and it's been ages since I've had little rats and had forgotten what charming little clowns baby rats are. This last week has been difficult, but it's helped to watch the sweet little babies bounce around...watching one build elaborate nests in a tube hammock while his brother busily dismantles it...it's great fun.
So, without further ado, I'd like to introduce my new sweet boys.
On the left is Dre, a champagne hooded boy, in the middle is Buster, a rex PEW (pink-eyed white), and Cee Lo on the left is a sweet little PEW boy. They are so fun and so sweet, so while I really wish my niece had listened to me and not brought new rats in the world when the shelters are bulging with available babies, I am glad they're here.
But, here we are...a week after surgery and my staples have been removed, and despite the nasty stomach bug that's putting me through the wringer at the moment...I'm mostly okay. I've lost 15 pounds, and I'm covered in bruises from the many failed IV attempts, but I'm okay...well as okay as I usually am.
I've got an appointment with the Stanford Rheumatology clinic on Monday, and I'm really looking forward to finding a decent plan of treatment for my arthritis, etc...
Anyway, the good happy stuff is what I want to focus on. See, for the last few years I have been rat free. When my last rat passed away a couple of years ago, I decided to simplify my life a bit, and be rat free. Then, my niece bought a couple of pet store rats and against my very strenuous objections, mated them. The resulting two litters were more than she could handle, and the midget and I had been discussing the possibility (okay the midget begged and pleaded and I considered) of getting more rats, and so now we're a rat home again.
We've got three precious little dumbo ratties...one has curly rex hair, two are white and one has a light, champagne colored hood. They are only two months old and it's been ages since I've had little rats and had forgotten what charming little clowns baby rats are. This last week has been difficult, but it's helped to watch the sweet little babies bounce around...watching one build elaborate nests in a tube hammock while his brother busily dismantles it...it's great fun.
So, without further ado, I'd like to introduce my new sweet boys.
On the left is Dre, a champagne hooded boy, in the middle is Buster, a rex PEW (pink-eyed white), and Cee Lo on the left is a sweet little PEW boy. They are so fun and so sweet, so while I really wish my niece had listened to me and not brought new rats in the world when the shelters are bulging with available babies, I am glad they're here.
Sunday, March 27, 2011
I Need Help
No big secret to anyone who's read so much as a single post here, right?
But, in reality, I do need help, actual physical help. I was never the world's greatest housekeeper, but since getting sick that's gotten much worse. I used to have regular cleaning binges, and if someone was coming for a visit, I could do the twenty minute clean and have my house be halfway decent...you know, as long as no one checked my closets or looked under the couch cushions.
The sicker I've gotten, the worse the arthritis and the worse the fatigue has gotten, the more sporadic my cleaning binges have become. Most of the time my house looks like a giant picked it up and shook it. There's crap everywhere, and laundry...dear god, don't get me started on the laundry.
The midget is a good kid, but she's a kid, and unfortunately has inherited my innate messiness and laziness. She takes advantage of the fact that I'm too tired to stay on her and push her to clean up after herself. She also takes advantage of the fact that my memory is a sieve these days and if I ground her in the morning I rarely remember that by mid afternoon.
When the midget's dad shows up to pick her up he makes it clear he disapproves of my slovenly nature. Of course, he isn't sick and taking care of a kid full time 24 hours a day, and even my four days a month minus the kid have shrunk down just a few hours once a week because the exgirlfriend has finally hurt the midget to the point that she refuses to see her at all. Which presents difficulties because, after all, the exgirlfriend is still living in the midget's father's house...the one his parents own.
Yeah, my kid isn't able to go visit her dad at the house her grandparents own. Awesome.
So...my few hours without the midget are spent sleeping, or doing homework, trying to get caught up on the things that are hard to do when a child, even one as old as the midget, is around. So..my old habit of resting the entire first day she was gone, and housework or schoolwork on the second...that's out the window...you know...along with my sanity...and my hopes for ever seeing her bedroom floor.
I know I need to ask for help. Ask my cousins, my sisters...my mom. Any of them would be willing to put on gaiters and wade through my mess and help me clean it. But I CAN'T ASK FOR HELP. I don't know why. I only know that it's common amongst people who suffer from chronic illness. There are so many amorphic offers of help, but no concrete..."Let me do this." "I am willing to do this." And asking for help feel like such an imposition, to do the things I should be able to do, even if I never really liked doing it in the first place. And worse, it feels like it makes the illness more concrete, more real.
Which is, simply, ridiculous. But I excel at the ridiculous, don't I? It's my forte. Because, refusing to acknowledge it's effect on my life doesn't lessen the impact, it only compounds it, because I wait until hope comes in late, comes in after the mess has completely demoralized me.
My cousin, the one who I'm always helping with a paper, or childcare or organizing or sorting laundry...she finally made me a concrete offer to help me clean my living room and kitchen. I had her for an hour and the front of my house, the largest part of my home, is now clean...I am not embarrassed to have company, not afraid the midget's father is planning another called to Children's Services, rather than offering help himself.
I need help...and I need help asking for help...
But, in reality, I do need help, actual physical help. I was never the world's greatest housekeeper, but since getting sick that's gotten much worse. I used to have regular cleaning binges, and if someone was coming for a visit, I could do the twenty minute clean and have my house be halfway decent...you know, as long as no one checked my closets or looked under the couch cushions.
The sicker I've gotten, the worse the arthritis and the worse the fatigue has gotten, the more sporadic my cleaning binges have become. Most of the time my house looks like a giant picked it up and shook it. There's crap everywhere, and laundry...dear god, don't get me started on the laundry.
The midget is a good kid, but she's a kid, and unfortunately has inherited my innate messiness and laziness. She takes advantage of the fact that I'm too tired to stay on her and push her to clean up after herself. She also takes advantage of the fact that my memory is a sieve these days and if I ground her in the morning I rarely remember that by mid afternoon.
When the midget's dad shows up to pick her up he makes it clear he disapproves of my slovenly nature. Of course, he isn't sick and taking care of a kid full time 24 hours a day, and even my four days a month minus the kid have shrunk down just a few hours once a week because the exgirlfriend has finally hurt the midget to the point that she refuses to see her at all. Which presents difficulties because, after all, the exgirlfriend is still living in the midget's father's house...the one his parents own.
Yeah, my kid isn't able to go visit her dad at the house her grandparents own. Awesome.
So...my few hours without the midget are spent sleeping, or doing homework, trying to get caught up on the things that are hard to do when a child, even one as old as the midget, is around. So..my old habit of resting the entire first day she was gone, and housework or schoolwork on the second...that's out the window...you know...along with my sanity...and my hopes for ever seeing her bedroom floor.
I know I need to ask for help. Ask my cousins, my sisters...my mom. Any of them would be willing to put on gaiters and wade through my mess and help me clean it. But I CAN'T ASK FOR HELP. I don't know why. I only know that it's common amongst people who suffer from chronic illness. There are so many amorphic offers of help, but no concrete..."Let me do this." "I am willing to do this." And asking for help feel like such an imposition, to do the things I should be able to do, even if I never really liked doing it in the first place. And worse, it feels like it makes the illness more concrete, more real.
Which is, simply, ridiculous. But I excel at the ridiculous, don't I? It's my forte. Because, refusing to acknowledge it's effect on my life doesn't lessen the impact, it only compounds it, because I wait until hope comes in late, comes in after the mess has completely demoralized me.
My cousin, the one who I'm always helping with a paper, or childcare or organizing or sorting laundry...she finally made me a concrete offer to help me clean my living room and kitchen. I had her for an hour and the front of my house, the largest part of my home, is now clean...I am not embarrassed to have company, not afraid the midget's father is planning another called to Children's Services, rather than offering help himself.
I need help...and I need help asking for help...
Saturday, March 19, 2011
I'm Baaaaack....
Disneyland was epic. The midget and I (along with the fam) had loads of fun, loads of bonding, and very little in the way of unhappiness. We drove home today. Yesterday? Some time after I woke up the last time at any rate.
We are mucho tired. Like beyond words tired...only I'm typing, so clearly I have words, they just don't make a lot of sense. I guess that's not really anything new, though.
While driving home this evening, once we finally in range of my usual radio station, we were listening to the radio and and the DJ told us about this story in which a woman hides various things (drugs and drug bags) inside her vagina. That part was nothing new if you've ever watched an episode of Locked Up Abroad, which being a NatGeo junkie, I totally have. What caught my attention was the $5.22 she was also carrying in her vagina. I mean...had the woman never heard of wallets, or even pockets for fuck sake? Of course, the DJ had it partially wrong...she actually had $51.22 up there.
I have some pretty big unanswered questions here, the biggest of which being whether or not that money will be returned to circulation. Also...how precisely do you come to the decision to stick not just dollar bills, but coins, in your vagina? And how the hell do you keep it there? And why the empty drug bags? I mean that has no value, does it? The drugs, the money that all has value, so it sorta makes sense you'd want to keep it close (I'd recommend a purse, but what do I know?), but the empty drug bags are basically just evidence against you so, I'd say...go ahead and not stick that in your vagina, if you must stick random items in your vagina.
I really want to talk to this woman. I mean, I want to know how you make the decision to stick these things in your vagina, and then how you go about making it all fit. 54 bags of heroin? Really? And even if you manage to cram it all in there, how do you make it stay? And who the hell would want to buy your vagina drugs? If nothing else, I want to give the woman a purse and explain to her how it works....
We are mucho tired. Like beyond words tired...only I'm typing, so clearly I have words, they just don't make a lot of sense. I guess that's not really anything new, though.
While driving home this evening, once we finally in range of my usual radio station, we were listening to the radio and and the DJ told us about this story in which a woman hides various things (drugs and drug bags) inside her vagina. That part was nothing new if you've ever watched an episode of Locked Up Abroad, which being a NatGeo junkie, I totally have. What caught my attention was the $5.22 she was also carrying in her vagina. I mean...had the woman never heard of wallets, or even pockets for fuck sake? Of course, the DJ had it partially wrong...she actually had $51.22 up there.
I have some pretty big unanswered questions here, the biggest of which being whether or not that money will be returned to circulation. Also...how precisely do you come to the decision to stick not just dollar bills, but coins, in your vagina? And how the hell do you keep it there? And why the empty drug bags? I mean that has no value, does it? The drugs, the money that all has value, so it sorta makes sense you'd want to keep it close (I'd recommend a purse, but what do I know?), but the empty drug bags are basically just evidence against you so, I'd say...go ahead and not stick that in your vagina, if you must stick random items in your vagina.
I really want to talk to this woman. I mean, I want to know how you make the decision to stick these things in your vagina, and then how you go about making it all fit. 54 bags of heroin? Really? And even if you manage to cram it all in there, how do you make it stay? And who the hell would want to buy your vagina drugs? If nothing else, I want to give the woman a purse and explain to her how it works....
Friday, March 11, 2011
Effing Disneyland, Ya'll!!
I'm getting ready to depart for The Happiest Place on Earth. We're leaving early Sunday morning (4 am) and making the 8-10 hour drive to Anaheim. We'll be in Disneyland and California Adventure Park for five whole days. This trip has been six months in the planning and we cannot wait to get there and have fun.
All this Disneyland stuff has me remembering a Disneyland trip when I was just a wee little girl...probably 30 years ago, now. (When the fuck did I get so old?) It's a somewhat clouded memory, but one that made me deeply afraid of Winnie the Pooh for years. It wasn't until my kid was born that I started to be able to handle exposure to Pooh Bear. I was there, at the happiest place on earth, and out of nowhere this giant yellow bear comes at me with his arms stretched out, intending to devour me, no doubt. I took one look at that menacing beast, noticed that no one was making any kind of move to save me and hauled off and kicked Winnie the Pooh in the leg, and ran and hid behind my mom.
Laugh if you want, but those fucking characters are huge and scary, especially when you're all of three feet tall. I couldn't even read a Winnie the Pooh book for years. It wasn't so much that I was scared of him (okay, I'm totally lying here...I was afraid of a fat yellow bear), especially as I got older and realized that there was nothing to be afraid of, that Pooh Bear wasn't an actual bear looking to devour little girls, that he'd much rather snack on honey than me, it was just that I couldn't get over that feeling of being intimidated by something so much bigger than I was.
I'm ready now...I want to get my picture taken with Mickey and Minnie, and Aurora from Sleeping Beauty. I'm going to be one pissed off camper if she isn't at the princess meet and greet. She's always been my favorite.
I haven't been to Disneyland in 15 years, and I've never taken the midget, so this trip is a really big deal for us. I'm not about to let anyone (not even some scary ass yellow bear) ruin it. The midget's been pretty sad lately...bullshit drama with the exgirlfriend who should be damn thankful that I'm a civilized woman and that it would hurt me more to punch her in the taco than it would hurt her. But that shit isn't going to interfere with us being happy at the Happiest motherfucking Place on the motherfucking Earth. I've kicked a six foot yellow bear with a gaping mouth and paws as big as my head. I'm hardly afraid to deliver the same treatment to some selfish bitch who isn't worthy of being spit on by the midget.
I'll be updating my Twitter stream but otherwise I'll be MIA here on the blog (Nothing unusual, right?). I'll be sure to put up a lengthy post complete with pictures.
As Aunt Becky of Mommy Wants Vodka has said...being sad is bullshit, and I'm totally hopping on her Bringing The Happy Back bandwagon. Because the midget and I have had a couple of shit years and Goddammit...ENOUGH IS FUCKING ENOUGH!! The midget and I are going immerse ourselves in the happy, happy, joy, joy that is the motherfucking Happiest Place on Earth, and we're going to bring that happy back and pound it firmly into our lives with a big fucking mallet. It's time to make 2011 my bitch, ya'll, and Disneyland is just the place to do it!
All this Disneyland stuff has me remembering a Disneyland trip when I was just a wee little girl...probably 30 years ago, now. (When the fuck did I get so old?) It's a somewhat clouded memory, but one that made me deeply afraid of Winnie the Pooh for years. It wasn't until my kid was born that I started to be able to handle exposure to Pooh Bear. I was there, at the happiest place on earth, and out of nowhere this giant yellow bear comes at me with his arms stretched out, intending to devour me, no doubt. I took one look at that menacing beast, noticed that no one was making any kind of move to save me and hauled off and kicked Winnie the Pooh in the leg, and ran and hid behind my mom.
Laugh if you want, but those fucking characters are huge and scary, especially when you're all of three feet tall. I couldn't even read a Winnie the Pooh book for years. It wasn't so much that I was scared of him (okay, I'm totally lying here...I was afraid of a fat yellow bear), especially as I got older and realized that there was nothing to be afraid of, that Pooh Bear wasn't an actual bear looking to devour little girls, that he'd much rather snack on honey than me, it was just that I couldn't get over that feeling of being intimidated by something so much bigger than I was.
I'm ready now...I want to get my picture taken with Mickey and Minnie, and Aurora from Sleeping Beauty. I'm going to be one pissed off camper if she isn't at the princess meet and greet. She's always been my favorite.
I haven't been to Disneyland in 15 years, and I've never taken the midget, so this trip is a really big deal for us. I'm not about to let anyone (not even some scary ass yellow bear) ruin it. The midget's been pretty sad lately...bullshit drama with the exgirlfriend who should be damn thankful that I'm a civilized woman and that it would hurt me more to punch her in the taco than it would hurt her. But that shit isn't going to interfere with us being happy at the Happiest motherfucking Place on the motherfucking Earth. I've kicked a six foot yellow bear with a gaping mouth and paws as big as my head. I'm hardly afraid to deliver the same treatment to some selfish bitch who isn't worthy of being spit on by the midget.
I'll be updating my Twitter stream but otherwise I'll be MIA here on the blog (Nothing unusual, right?). I'll be sure to put up a lengthy post complete with pictures.
As Aunt Becky of Mommy Wants Vodka has said...being sad is bullshit, and I'm totally hopping on her Bringing The Happy Back bandwagon. Because the midget and I have had a couple of shit years and Goddammit...ENOUGH IS FUCKING ENOUGH!! The midget and I are going immerse ourselves in the happy, happy, joy, joy that is the motherfucking Happiest Place on Earth, and we're going to bring that happy back and pound it firmly into our lives with a big fucking mallet. It's time to make 2011 my bitch, ya'll, and Disneyland is just the place to do it!
Friday, February 25, 2011
Passed Out on the Bathroom Floor
I've made jokes about being passed out on the bathroom floor...I've been there a few times in the past. Mostly in the past when I could drink enough to get drunk. And it's a funny little anecdote or embarrassing story to tell when I've run out of stories about how I forget shit that I really should remember...you know, like fifty percent of the things my best friend tells me. I'm starting to think I should keep notes.
But I digress. (How unusual for me, right?)
Today I had the scariest fucking moment of my life. I thought it was last year when the midget was diagnosed, but I was totally fucking wrong. Today, when the midget passed out on the bathroom floor because of a nasty low blood sugar, that was pretty much it.
I've read about diabetic lows that result in black outs and seizures. I knew it would happen one day. It's impossible for a Type 1 diabetic with reasonable control of blood sugars to not experience a low blood sugar. Because no matter how precisely I count carbs and calculate insulin dosages, shit happens. Hormones play their fucked up little games, illness plays a part, exercise, rest, even temperature screws with insulin. I am not a machine, and I am not perfect. Unlike you and me, my daughter doesn't have a pancreas that does what it's supposed to do. I am her pancreas.
Let me repeat that for you: I am my daughter's pancreas.
Me...the woman who literally cannot remember ANYTHING! And I'm in charge of something as complex as regulating a hormone in my kid's body. Through math. This is a fucking joke, right? I have to keep my kid alive using math? Me? Seriously? This is someone's idea of a joke right?
I talked to her doctor...we went over what happened today, the carbs eaten and the insulin dispensed...and there's no clear mistake. There isn't something I can point to and say "Aha! Fucked up there, and I won't do it again." I spoke to some other Type 1 parents on an online group I'm a member of, and they each told me their story of how it happened to their kid, how bad they felt, and assured me that it wasn't my fault. The doctor assured me it wasn't my fault.
But I'm my kid's pancreas. My pancreas doesn't land me on the bathroom floor. Neither does yours.
I'm a shit pancreas.
It took hours tonight to convince the midget that she could sleep, that she would be safe, and that she shouldn't be afraid of the insulin shot I had to give her. She's finally sleeping now, and slept through the last blood sugar check...the blood sugar that told me I had to give more insulin, which means I won't sleep until we pass the three hour mark, the moment when the insulin peaks, and I can test her to make sure that the insulin didn't send her too low.
Fuck you, diabetes...fuck you...
But I digress. (How unusual for me, right?)
Today I had the scariest fucking moment of my life. I thought it was last year when the midget was diagnosed, but I was totally fucking wrong. Today, when the midget passed out on the bathroom floor because of a nasty low blood sugar, that was pretty much it.
I've read about diabetic lows that result in black outs and seizures. I knew it would happen one day. It's impossible for a Type 1 diabetic with reasonable control of blood sugars to not experience a low blood sugar. Because no matter how precisely I count carbs and calculate insulin dosages, shit happens. Hormones play their fucked up little games, illness plays a part, exercise, rest, even temperature screws with insulin. I am not a machine, and I am not perfect. Unlike you and me, my daughter doesn't have a pancreas that does what it's supposed to do. I am her pancreas.
Let me repeat that for you: I am my daughter's pancreas.
Me...the woman who literally cannot remember ANYTHING! And I'm in charge of something as complex as regulating a hormone in my kid's body. Through math. This is a fucking joke, right? I have to keep my kid alive using math? Me? Seriously? This is someone's idea of a joke right?
I talked to her doctor...we went over what happened today, the carbs eaten and the insulin dispensed...and there's no clear mistake. There isn't something I can point to and say "Aha! Fucked up there, and I won't do it again." I spoke to some other Type 1 parents on an online group I'm a member of, and they each told me their story of how it happened to their kid, how bad they felt, and assured me that it wasn't my fault. The doctor assured me it wasn't my fault.
But I'm my kid's pancreas. My pancreas doesn't land me on the bathroom floor. Neither does yours.
I'm a shit pancreas.
It took hours tonight to convince the midget that she could sleep, that she would be safe, and that she shouldn't be afraid of the insulin shot I had to give her. She's finally sleeping now, and slept through the last blood sugar check...the blood sugar that told me I had to give more insulin, which means I won't sleep until we pass the three hour mark, the moment when the insulin peaks, and I can test her to make sure that the insulin didn't send her too low.
Fuck you, diabetes...fuck you...
Saturday, October 16, 2010
Better...
This song got me through some very rough moments after the exgirlfriend left.
I am better. Happier. Just plain happy. I am strong again, for myself and for the midget. I am planning for a future that includes my family and my friends and the people I love so much who got me through those dark days.
Last night the midget had another of her breakdowns about missing the exgirlfriend. This after coming back from her dad's house and having had a similar breakdown in front of her dad. And I wish there was some way I could promise the midget that it won't hurt some day.
But, I can't. I lost a girlfriend, a lover, a friend...but she lost a parent, and I know how that feels, when you have a parent walk out on you. I know that for the rest of your life you wonder what you have done to make them stop loving you and what you could have done differently to make them love you.
I've spent years in therapy going over how it was never my fault, that my biodad bailing had nothing to do with me. I've discussed it with my friends, my new family...and I've even discussed it with my biodad. I know intellectually that it wasn't my fault...but, emotionally? Well, that's a whole other ball of wax. I know that so much of my self hatred comes from that feeling...that "how can anyone ever want me, when my own parents didn't?"
And I know it's different for the midget. She is surrounded by love daily. There has never been a moment in her life that she has been alone, or that she has doubted that she had people who loved her. But there is a part of me that asks...is this going to screw her up? Is this going to be the thing that breaks her so that she's constantly seeking approval from outside sources, like I am?
The hardest part for the midget is that the exgirlfriend is there peripherally. So, she sees the exgirlfriend for five minutes here and ten minutes there, but never alone and never in the parenting role. This is a woman she knew as her mother all of her fucking life, and now she gets to watch her be a parent to someone else's kid while she is pining for her mom. I could forgive the exgirlfriend for everything she did, the lies she's told the drama she caused...all of it. But, this? Watching my daughter go through her diagnosis and all of the hell she's gone through without her other mom? I can never forgive this.
I can only hope that my love, my family's love, her father's love will be enough for the midget. That she will be able to see and understand that the exgirlfriend's choices have absolutely nothing to do with her, but that instead the exgirlfriend is irretrievably broken in some deep way she cannot understand and I cannot explain. I can only hope that as the midget faces down the next few years of her life, arguably the most difficult years for any girl, that she doesn't internalize the exgirlfriend's choice to walk away as some sort of proof that she is not good enough, or that she is in some way undeserving of love.
I just wish there was a way that I could heal this for her and make it better, but I can't. I've tried. I've begged the exgirlfriend a million times to make time for the midget. I've offered to set up diabetes education so that she can have one on one time with the midget, and I've gotten no response. This is the one thing that never gets better.
I am better. Happier. Just plain happy. I am strong again, for myself and for the midget. I am planning for a future that includes my family and my friends and the people I love so much who got me through those dark days.
Last night the midget had another of her breakdowns about missing the exgirlfriend. This after coming back from her dad's house and having had a similar breakdown in front of her dad. And I wish there was some way I could promise the midget that it won't hurt some day.
But, I can't. I lost a girlfriend, a lover, a friend...but she lost a parent, and I know how that feels, when you have a parent walk out on you. I know that for the rest of your life you wonder what you have done to make them stop loving you and what you could have done differently to make them love you.
I've spent years in therapy going over how it was never my fault, that my biodad bailing had nothing to do with me. I've discussed it with my friends, my new family...and I've even discussed it with my biodad. I know intellectually that it wasn't my fault...but, emotionally? Well, that's a whole other ball of wax. I know that so much of my self hatred comes from that feeling...that "how can anyone ever want me, when my own parents didn't?"
And I know it's different for the midget. She is surrounded by love daily. There has never been a moment in her life that she has been alone, or that she has doubted that she had people who loved her. But there is a part of me that asks...is this going to screw her up? Is this going to be the thing that breaks her so that she's constantly seeking approval from outside sources, like I am?
The hardest part for the midget is that the exgirlfriend is there peripherally. So, she sees the exgirlfriend for five minutes here and ten minutes there, but never alone and never in the parenting role. This is a woman she knew as her mother all of her fucking life, and now she gets to watch her be a parent to someone else's kid while she is pining for her mom. I could forgive the exgirlfriend for everything she did, the lies she's told the drama she caused...all of it. But, this? Watching my daughter go through her diagnosis and all of the hell she's gone through without her other mom? I can never forgive this.
I can only hope that my love, my family's love, her father's love will be enough for the midget. That she will be able to see and understand that the exgirlfriend's choices have absolutely nothing to do with her, but that instead the exgirlfriend is irretrievably broken in some deep way she cannot understand and I cannot explain. I can only hope that as the midget faces down the next few years of her life, arguably the most difficult years for any girl, that she doesn't internalize the exgirlfriend's choice to walk away as some sort of proof that she is not good enough, or that she is in some way undeserving of love.
I just wish there was a way that I could heal this for her and make it better, but I can't. I've tried. I've begged the exgirlfriend a million times to make time for the midget. I've offered to set up diabetes education so that she can have one on one time with the midget, and I've gotten no response. This is the one thing that never gets better.
Tuesday, October 05, 2010
Fuck off, Diabetes...
There will be no funny or witty in this post. I'm warning you now, and I'll likely take it down, but I need to get this out, need to know that someone in the universe is hearing me, and I need to do it in a place the midget can't see it. She doesn't read my blog. It's not allowed, and it's blocked on her computer. I do that so I can say nasty things about her other parents, post not so appropriate pictures of myself and have a corner of the universe that I don't have to censor myself in relation to her.
It's 1:30 in the morning, and we're having the worst diabetes week we've had since diagnosis. Insane blood glucose numbers, ever increasing insulin needs, ketone testing...and the endless blood sugar testing. My daughter is a pin cushion, and I hate myself each time I jam another needle into her skin, when she winces, but doesn't say anything, when it hurts badly enough that she says "Ow, that one hurt," it feels like razors cutting my heart to ribbons.
170 days since diagnosis. 170 days since I leaned against the wall in the hallway outside the emergency room and allowed myself the luxury of five minutes of tears. 170 days since I called the exgirlfriend and the midget's father in the middle of the night and told them to get to the hospital NOW! 170 days since I watched them strap my daughter to a gurney and load her into an ambulance. 170 days since I heard the term "PICU" and realized that's where my daughter was going. 170 days of trying to readjust to normal, and realize that nothing was ever going to be normal again.
170 means at least 700 finger pricks and 700 injections. And that's assuming that every day we only test four times and give four injections. Which never, ever happens. When she runs high, I give corrections, then check again to see if she's come down. When she runs low, I give sugar, then recheck to make sure she's gone back up. Not even six months in and she's had 1500 holes poked into her body.
I'm sitting here at 1:30 in the morning waiting for it to be 2am so that I can test her again, and then lay down and try to sleep, but I know that I will instead spend the rest of the night waking up every thirty minutes to make sure she hasn't gone low in her sleep, because she doesn't wake up when she goes low while sleeping, which could mean...I can't even bring myself to type the word, can't bring myself to use it in conjunction with my beautiful, precious daughter...but it would be bad, very bad.
On the other hand...when she runs high all night like she has all this week, I think about all that sugar in her blood, and the damage it's doing to her body, knowing that it's coating the blood vessels in her heart and her eyes and her kidneys, another layer of damage, bringing her that much closer irreparable harm. It sickens me, makes me physically ill, makes me want to scream and cry.
170 days of wishing that I could take her place for each finger stick and injection. 170 of wishing I could take away her diabetes. 170 of wishing there was a cure...
It's 1:30 in the morning, and we're having the worst diabetes week we've had since diagnosis. Insane blood glucose numbers, ever increasing insulin needs, ketone testing...and the endless blood sugar testing. My daughter is a pin cushion, and I hate myself each time I jam another needle into her skin, when she winces, but doesn't say anything, when it hurts badly enough that she says "Ow, that one hurt," it feels like razors cutting my heart to ribbons.
170 days since diagnosis. 170 days since I leaned against the wall in the hallway outside the emergency room and allowed myself the luxury of five minutes of tears. 170 days since I called the exgirlfriend and the midget's father in the middle of the night and told them to get to the hospital NOW! 170 days since I watched them strap my daughter to a gurney and load her into an ambulance. 170 days since I heard the term "PICU" and realized that's where my daughter was going. 170 days of trying to readjust to normal, and realize that nothing was ever going to be normal again.
170 means at least 700 finger pricks and 700 injections. And that's assuming that every day we only test four times and give four injections. Which never, ever happens. When she runs high, I give corrections, then check again to see if she's come down. When she runs low, I give sugar, then recheck to make sure she's gone back up. Not even six months in and she's had 1500 holes poked into her body.
I'm sitting here at 1:30 in the morning waiting for it to be 2am so that I can test her again, and then lay down and try to sleep, but I know that I will instead spend the rest of the night waking up every thirty minutes to make sure she hasn't gone low in her sleep, because she doesn't wake up when she goes low while sleeping, which could mean...I can't even bring myself to type the word, can't bring myself to use it in conjunction with my beautiful, precious daughter...but it would be bad, very bad.
On the other hand...when she runs high all night like she has all this week, I think about all that sugar in her blood, and the damage it's doing to her body, knowing that it's coating the blood vessels in her heart and her eyes and her kidneys, another layer of damage, bringing her that much closer irreparable harm. It sickens me, makes me physically ill, makes me want to scream and cry.
170 days of wishing that I could take her place for each finger stick and injection. 170 of wishing I could take away her diabetes. 170 of wishing there was a cure...
Labels:
depression,
diabetes,
insomnia,
parenting,
the midget
Sunday, October 03, 2010
Exciting? I'll pass....
What's that saying about the worst thing you can do to someone is wish them an "exciting life?" Yeah, I tried to google it, but google's being an asshole and gave me NOTHING. It kind of fits in with the theme I've got going on this week.
Recent Events (in no special order, because that would require brain function I just don't have):
My Mom has been diagnosed with a Thymoma (tumor of the Thymus) and is now awaiting her appointment with the surgeon so they can cut open her chest and remove it.
The midget has been ill and has accordingly had the worst blood sugar readings she's had since diagnosis, including a meter reading which said HI...and yeah it said it all cheerful, like with big letters like it was an old friend I hadn't seen in a long time. Glucose meters are kind of assholey.
My younger sister had a birthday party at her house which I did not get to attend, due to the midget's illness and the havoc it's wreaking on it's illness.
I have been dealing with difficult blood sugar readings and am trying to complete three Excel spread sheets in four hours but due to my sleep deprivation, I keep surfing the web like a squirrel on crack.
Charlie erased about half of one the spreadsheets I was working on. Charlie's kind of an asshole sometimes...
I have become addicted to the show Veronica Mars three years after it was canceled thanks to the beauty that is Netflix.
I've discovered, through the aforementioned Veronica Mars addiction, a fantastic band called The Dandy Warhols and am currently obsessed with their music.
The midget's father has decided (finally) to go to AA and stop drinking. Said decision came the day after I spent an hour on Facebook chat trying to talk him down while I waited for the midget's blood sugar to drop under 400.
I didn't take my antidepressant for a day and I missed a dose of my thyroid med, too...and I was a total asshole for the subsequent two days, much to the dismay of everyone around me.
So, yeah...I'm kinda flailing here at the moment. I'm hoping this bug, whatever it is, that has the midget's numbers all wonky will resolve itself quickly.
Anyway, here's the song that got me hooked on The Dandy Warhols. You must love it, as I have loved it, and there will be joy.
See...I'm paraphrasing The Princess Bride. Clearly a sign of sleep deprivation.
We Used to be Friends-The Dandy Warhols
Recent Events (in no special order, because that would require brain function I just don't have):
My Mom has been diagnosed with a Thymoma (tumor of the Thymus) and is now awaiting her appointment with the surgeon so they can cut open her chest and remove it.
The midget has been ill and has accordingly had the worst blood sugar readings she's had since diagnosis, including a meter reading which said HI...and yeah it said it all cheerful, like with big letters like it was an old friend I hadn't seen in a long time. Glucose meters are kind of assholey.
My younger sister had a birthday party at her house which I did not get to attend, due to the midget's illness and the havoc it's wreaking on it's illness.
I have been dealing with difficult blood sugar readings and am trying to complete three Excel spread sheets in four hours but due to my sleep deprivation, I keep surfing the web like a squirrel on crack.
Charlie erased about half of one the spreadsheets I was working on. Charlie's kind of an asshole sometimes...
I have become addicted to the show Veronica Mars three years after it was canceled thanks to the beauty that is Netflix.
I've discovered, through the aforementioned Veronica Mars addiction, a fantastic band called The Dandy Warhols and am currently obsessed with their music.
The midget's father has decided (finally) to go to AA and stop drinking. Said decision came the day after I spent an hour on Facebook chat trying to talk him down while I waited for the midget's blood sugar to drop under 400.
I didn't take my antidepressant for a day and I missed a dose of my thyroid med, too...and I was a total asshole for the subsequent two days, much to the dismay of everyone around me.
So, yeah...I'm kinda flailing here at the moment. I'm hoping this bug, whatever it is, that has the midget's numbers all wonky will resolve itself quickly.
Anyway, here's the song that got me hooked on The Dandy Warhols. You must love it, as I have loved it, and there will be joy.
See...I'm paraphrasing The Princess Bride. Clearly a sign of sleep deprivation.
We Used to be Friends-The Dandy Warhols
Friday, September 10, 2010
I'm procrastination's bitch...
I should be getting ready for bed. If I was smart, and did things that made sense, I'd be done with the two chapters I'm supposed to read and I'd be all snuggled in bed and sleeping already. Tomorrow is a big day...the midget and two of her cousins have birthdays in a 6 week span, and being that we moms aren't as young as we used to be, a couple of years ago, we looked at each other and said...you know what's a great idea? One party for these three...saves us time and money and keeps us from going insane and duct taping our kids to walls.
Which, reminds me...the other day, my sister-in-law was putting my niece to bed and said niece was being a complete pain in the ass, and my sister-in-law wanted to put her in time out, but the kid was already in bed, so she wasn't sure if she should get her out of bed just for a time out, so my precious angel niece looked her mother in the face and asked "Are you going to tape me to the wall like Auntie Laura always says?" It brought a tear to my eye when I heard that story, and also, since it involved no outside humiliation, I didn't have to apologize. Unlike last week when one of my nieces told my cousin B's friend that she was going to "Punch her in the face." I apologized for teaching my niece that particular phrase, but since the midget threatened to kick me in the taco last week, I don't know why B was so bent out of shape about the punch in the face thing.
Anyway...I was saying something, wasn't I? Oh, that's right...procrastination. So, yeah, big brunch birthday bash tomorrow and then an anniversary party for my aunt and uncle in the evening, so even though the assignment technically isn't due until 11PM tomorrow, there is clearly no way I'm going to be able to do it tomorrow, and sleep needs to happen because if sleep doesn't happen, I cannot be my usual sparkling self (as in I will not be threatening to punch people or kick them in the taco) and I might fall asleep in the middle of the pinata portion of tomorrow's agenda.
And if there's one thing I know when it comes to these kids and candy, it's that you need to be on your guard. And holy crap...whose idea was it to give these children candy in a game that involves a baseball bat...it's all going to end in tears...
Which, reminds me...the other day, my sister-in-law was putting my niece to bed and said niece was being a complete pain in the ass, and my sister-in-law wanted to put her in time out, but the kid was already in bed, so she wasn't sure if she should get her out of bed just for a time out, so my precious angel niece looked her mother in the face and asked "Are you going to tape me to the wall like Auntie Laura always says?" It brought a tear to my eye when I heard that story, and also, since it involved no outside humiliation, I didn't have to apologize. Unlike last week when one of my nieces told my cousin B's friend that she was going to "Punch her in the face." I apologized for teaching my niece that particular phrase, but since the midget threatened to kick me in the taco last week, I don't know why B was so bent out of shape about the punch in the face thing.
Anyway...I was saying something, wasn't I? Oh, that's right...procrastination. So, yeah, big brunch birthday bash tomorrow and then an anniversary party for my aunt and uncle in the evening, so even though the assignment technically isn't due until 11PM tomorrow, there is clearly no way I'm going to be able to do it tomorrow, and sleep needs to happen because if sleep doesn't happen, I cannot be my usual sparkling self (as in I will not be threatening to punch people or kick them in the taco) and I might fall asleep in the middle of the pinata portion of tomorrow's agenda.
And if there's one thing I know when it comes to these kids and candy, it's that you need to be on your guard. And holy crap...whose idea was it to give these children candy in a game that involves a baseball bat...it's all going to end in tears...
Sunday, July 25, 2010
Further Evidence That The Midget is My Kid
Had a big family barbecue today. The midget and I were tired and slept in, and were just kind of lazing around the house until about noon, when the cousins started calling to harass me into getting my lazy ass into gear. About the third time they called, the midget answers and I hear her going "Uh huh, uh huh" and then "Okay." She hangs up the phone, turns to me and says..."Basically, Mom, all I heard was 'whine, whine, whine...get up here.'"
It brought a tear to my eye...
It brought a tear to my eye...
Monday, July 12, 2010
Bad Blogger...
That's me. I have attempted several starts at posts, but life (and my crazy fibro-fogged bipolar brain) has stopped me dead each time.
There are big changes coming to my universe...the midget and I are striking out on our own..well, kinda. For a number of reasons I'd rather not explain, it just isn't working out living with my sister. So, we're headed back "up the hill" to the family's property (well, you know, assuming it's okay with my parents). I've been batting the idea around for awhile, and the midget's been begging for the move, so better to do it now, before school starts...you know, when it's eight million degrees outside.
So, given that the next few weeks will be all about moving and getting shit done, I doubt I'll be a good blogger, but I'm going to try like hell to at least continue with the HNT posts and a tidbit here and there...Onward...right?
There are big changes coming to my universe...the midget and I are striking out on our own..well, kinda. For a number of reasons I'd rather not explain, it just isn't working out living with my sister. So, we're headed back "up the hill" to the family's property (well, you know, assuming it's okay with my parents). I've been batting the idea around for awhile, and the midget's been begging for the move, so better to do it now, before school starts...you know, when it's eight million degrees outside.
So, given that the next few weeks will be all about moving and getting shit done, I doubt I'll be a good blogger, but I'm going to try like hell to at least continue with the HNT posts and a tidbit here and there...Onward...right?
Tuesday, June 29, 2010
No Words...
I'm sad today...learned something last night that made realize the exgirlfriend as I knew her truly does not exist any longer. After all that's happened in the last year and a half, this final straw seems insignificant on the surface, but speaks volumes about how far she's come from the woman I once loved. It's not even worth explaining, as it doesn't really affect me or the midget, other than to make me realize that the exgirlfriend's choice to be less active in the midget's life than the midget's father is a blessing in disguise.
I've tried to write this post three times in the last 17 hours, and I'm still having a hard time finding the words to convey how I'm feeling. I can't even find a song that says what I can't...
So, instead, I'm going to post this youtube video of the current audiobook that is amusing me and the midget, because it's made of awesome. It's also in keeping with the vampire theme I've got going on today, since the younger sister is taking the midget and me to see the new Twilight movie...Yay for sparkly vampires...
I've tried to write this post three times in the last 17 hours, and I'm still having a hard time finding the words to convey how I'm feeling. I can't even find a song that says what I can't...
So, instead, I'm going to post this youtube video of the current audiobook that is amusing me and the midget, because it's made of awesome. It's also in keeping with the vampire theme I've got going on today, since the younger sister is taking the midget and me to see the new Twilight movie...Yay for sparkly vampires...
Sunday, June 06, 2010
What a Difference a Year Makes...
Ah, the first weekend in June. Warm weather, the end of school and for us here in my tiny corner of the universe...the Italian Picnic. It's as small town as you can get. A small carnival with a handful of rides, playing bingo for salami, listening to a bad cover band, visiting with a good friend at the Bocce Ball court. It is such an integral part of life in this area that it's never really a question of if you're going to go, but rather, when, and with whom.
I spent the evening at the picnic with the family. Barely organized chaos it was, what with the youngest girl wanting to do everything the midget (who is 7 years older) did, while our middle girls tried to be brave enough to ride the carousel by themselves. The midget was amazingly patient with her youngest girl cousin, as she always is. She went on the "baby rides" with her and took her down the big slide about a dozen times and only whined a little about not being able to go on the big, scary rides because she didn't want to go by herself.
It really made me think about last year, and how far I've come since then. I was tying myself in knots over someone who wasn't worth the time and the effort and trying to be strong enough to parent by myself, giving the exgirlfriend far more credit than she deserved in terms of what she brought to the table. A year ago, I thought the worst had happened, but I've since learned better. What had happened was the best thing that could happen, it was just tied up with so much ugliness that I couldn't see how much better off the midget and I were without a woman who not only wasn't happy, but didn't want to be happy, and didn't want the life we lived. I keep thinking how hard it would have been to make it through the last two months with all that's happened with the midget and having the added burden of trying to tiptoe around the exgirlfriend.
I hate to use a cliche, but things happen for a reason. Every horrible, shitty thing that has happened in my life has made room for something better, made me strong enough to be the midget's mom and to parent on my own. I'm not perfect, far from it, but I'm holding our lives together and the midget's world is full of lots of love and laughter and family, and that's the only indicator of success I need...
I spent the evening at the picnic with the family. Barely organized chaos it was, what with the youngest girl wanting to do everything the midget (who is 7 years older) did, while our middle girls tried to be brave enough to ride the carousel by themselves. The midget was amazingly patient with her youngest girl cousin, as she always is. She went on the "baby rides" with her and took her down the big slide about a dozen times and only whined a little about not being able to go on the big, scary rides because she didn't want to go by herself.
It really made me think about last year, and how far I've come since then. I was tying myself in knots over someone who wasn't worth the time and the effort and trying to be strong enough to parent by myself, giving the exgirlfriend far more credit than she deserved in terms of what she brought to the table. A year ago, I thought the worst had happened, but I've since learned better. What had happened was the best thing that could happen, it was just tied up with so much ugliness that I couldn't see how much better off the midget and I were without a woman who not only wasn't happy, but didn't want to be happy, and didn't want the life we lived. I keep thinking how hard it would have been to make it through the last two months with all that's happened with the midget and having the added burden of trying to tiptoe around the exgirlfriend.
I hate to use a cliche, but things happen for a reason. Every horrible, shitty thing that has happened in my life has made room for something better, made me strong enough to be the midget's mom and to parent on my own. I'm not perfect, far from it, but I'm holding our lives together and the midget's world is full of lots of love and laughter and family, and that's the only indicator of success I need...
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