Sunday, September 09, 2007


I haven't talked much about my health, lately. Mostly, because there aren't any new developments and I don't have any new information, so what's the point in going over the same old stuff.

However, today I lost an opportunity to have lunch with Craig, of Craigorian Chant, due to my crappy health. I've had a rough weekend, tired and achy and tight, heavy chest. I suspect there is some sort of infection going on, which is usually what causes my body to do this. It's not bad enough to rush off to the ER, but I will be calling my GP tomorrow to have some blood work done.

I've gotten used to certain things, like that working is sort of just not going to happen for me right now. I know that when I do too much or get too little sleep I'm going to pay for it. What I hate, hate, hate is when out of nowhere I get waylaid and spend two or three days on the fucking couch rather than hanging out with friends.

I don't cry too much over the things I've lost, because I presume that I will one day work and hike again. I presume that camping and swimming and spending an hour out in the park will one day be possible without paying for it for a week.

However, losing something so simple and so essential as spending time with people I care about really fucking pisses me off. I don't see friends that often, being that my friends have scattered to the four corners of the world, so even though I thoughtfully stayed in the town where all of their parent's live so that I would see them when they were home for visits, I still don't see them anywhere near as much as I'd like. And when I have the opportunity to spend time with one of them, and can't because of this thing, this crappy illness, I get really fucking pissed.

And this isn't the first time it's happened. I've missed visits with lots of other friends. Grrr....but how do you fight something that you can't see or predict? Gah!! I just don't know.

1 comment:

Canada Mom said...

And for such a once lively, gad about as you, I know this is hard on hold your friends close to your heart! If I could, I would gather all the "spoons" in the universe and present them to you, to use as needed, which, with Lupus, is all the time.....I cried when I read this....not only are you helpless, little one, but those who love you are too.....fucking lupus, anyway.....