Thursday, August 18, 2011

Where the hell have I been?

I know my regular readers are down to checking once a week or so to see if I've written (well, those who don't have a blogroll which tells them when I've done so), but since you are regular readers, then this doesn't surprise you. I'm a flaky bastard on a good day, and since good days haven't been too numerous around here, lately, mostly what I've done is deal with the midget's insulin pump start and look at pictures of cute puppies on my computer.

Anyway...to bring you (all five or six of you) up to speed, the midget is on an insulin pump now, and I love that thing more than...well, there are no words to tell you howm\ much I love that damn thing. It looks like a pager (you remember pagers, right?) and it's attached to my kid, or else I'd dry hump the damn thing I love it so much. It has made such a difference in the way we handle her diabetes, and it's only been on her body for two weeks, and I'm not yet as savvy about its software as I will be at some point. First and foremost, I only poke a needle in to the midget's skin once every three days (well, less if a site fails or we have some other issue, but usually three days). I don't give her long acting insulin any more, which is fantastic because the long acting insulin burns. We are also able to tell, at any given moment, just how much insulin is active in her system...and since we know how much one unit of insulin brings her blood sugar down, we've avoided numerous low blood sugars. It's brilliant!

The diabetes care isn't the reason I haven't been blogging, well, not the main reason. If the midget didn't have diabetes that requires my attention, I might have used the little energy I had for blogging, but then, I might not have. When I feel like crap, I only do what I have to do and these days, the only thing that falls under that heading is taking care of the midget. As parents everywhere will tell you, parenting is a full time job...you don't get to take time off even when your body is screaming for you to do so. So, the midget got taken care of, but very little else got done. It's been a pretty bad summer, which means all my lovely plans of spending nearly every day at the pool were vanquished. We had a few pool days,and even one water park (I prayed for death the next day) but, summer's over and I can safely say we didn't spend even a quarter of it at the pool. Or the lake. And the one day we did make it to the lake, I felt to crappy to even try to swim.

I've been fighting a very nasty chest pain off and on since March. The CT scan done before I got my gall bladder removed showed fluid around my heart, which was goodish, since I'd had several EKGs and knew I wasn't having a heart attack. But, obviously, fluid around the heart is bad. It's not terrible, but definitely not good...and my regular doctor, who while not anyone's vote for sweetheart of the year, is good enough, at least, to know when he doesn't know something. So, off the cardiologist I went. The cardiologist ordered another ECG (different from an EKG) and said that in his opinion, the inflammation, and resulting fluid, he saw were text book examples of Lupus. He also said that at this time, there is no need for surgery (Yay!) but that he wants me to go back to the rheumatologist and get started on treatment, which, since I'm already on high doses of NSAIDs (non-steroidal anti-inflammatories)which are clearly having no effect on the inflammation, will be steroids. I've taken short courses of steroids in the past, and while I hate them, they are preferable to any long term, lasting damage to my heart.

I so meant to write a longer, more entertaining post, but I've run out of energy, and if I don't just put this up now, it'll go into the huge pile of drafts I've already got and it will never be done. So, pretend I said something funny...

2 comments:

Archaeogoddess said...

Yay to the pump and Yay to not more surgery! If it weren't for the RA, I'd say you should take advantage of the steroids and get Barry Bond arms... damn you RA!

DegeSMS said...

surgery uff..